https://www.youtube.com/watch?v=giqFyUEVqpQ See what it’s like to be a Salty Girl in the eyes of Bailey Anne Vincent, one of the Cystic Fibrosis patients portrayed in Ian Pettigrew’s recently published the book Salty Girls. Learn more about the Salty Girls Book here: https://bit.ly/1PQ6rjC…
Social Clips
L’Erin Stortz , General Manager of the Matthew Morris Salon will soon be honored by the Cystic Fibrosis Foundation at a special event recognizing outstanding young professionals. In accepting this distinction, she committed to raise money to help the Foundation realize its mission of controlling and curing cystic…
1. Foreverland (2011)Â See IMDB page: https://imdb.to/1RY2YyO The Cystic Fibrosis News Today forums are a place to connect with other patients, share…
A new study identified a genetic element that codifies a novel iron acquisition system that plays a previously undiscovered role in P. aeruginosa airway infection during cystic fibrosis (CF). The discovery could aid in improving prevention and treatment of P. aeruginosa in CF patients. Learn more…
https://www.youtube.com/watch?v=3ARdU_FVAgA Orkambi is a combination therapy for treatment of cystic fibrosis. The FDA approval for the therapy was announced on July 2nd, 2015. This is Kate Marshall’s Orkambi testimony before the Open Public Hearing OPH portion of the May 12, 2015 Pulmonary-Allergy Drugs Advisory Committee…
According to the Cystic Fibrosis Foundation: About 70,000 people are living with cystic fibrosis worldwide; In the United States alone: About 30,000 people are living with cystic fibrosis; Approximately 1,000 new cases of CF are diagnosed each year; More than 75 percent of people with CF are diagnosed…
Orkambi (lumacaftor/ivacaftor) For Cystic Fibrosis Ex-vivo Lung Perfusion Technology Opens New Possibilities In One Of The Most Problematic Areas Of Lung Transplant Surgery Galapagos Announces Advancement of GLPG2665 for Triple Combination Treatment for Cystic Fibrosis Patients …
“She was our first child and we had not had prenatal genetic testing. When she was one day old, we were told she may have CF.” Read the full article: https://bit.ly/1LSBXHK…
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Learn more about Cystic Fibrosis Symptoms here: https://bit.ly/1PcTgtJ…
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