Everything You Need to Know About Orkambi
Orkambi is a combination therapy for treatment of cystic fibrosis. The FDA approval for the therapy was announced on July 2nd, 2015. Learn all about it here: https://bit.ly/1jCoQUT…
Social Clips
#InternationalMusicDay – OneRepublic Dedicates Song To A Cystic Fibrosis Patient
OneRepublic’s video begins with an intimate look into Warnecke’s daily treatment regimen for the disease, and is complemented by interview sequences where he outlines the history of his diagnosis, as well as the challenges and realities he faces both now and in the future. Continue reading: https://bit.ly/1PQSZtO…
#tbt – Remembering Jennifer
Remembering Jennifer’s story, the amazing woman who, unfortunately, lost the battle against Cystic Fibrosis after 23 years of fighting. Read the full article here: https://bit.ly/1jAqRRu…
What not to say to someone living with a chronic illness such as Cystic Fibrosis
Gifted Life is committed to support and nurture transplant recipients, their family and friends and to promote organ donation and has recently posted this video about what not to say to someone living with a chronic illness such as cystic fibrosis. Learn more about CF.
Your CF Community
Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.