Author Archives: Isaura Santos

                  Be sure to follow International Biophysics Corp. at this year’s MDA Clinical Conference, where it will showcase the Afflovest, a next-generation High Frequency Chest Wall Oscillation (#HFCWO) vest, featuring a quiet, lightweight design that offers proven effectiveness…

“She was our first child and we had not had prenatal genetic testing. When she was one day old, we were told she may have CF.” Read the full article: http://bit.ly/1LSBXHK…

Check out the Frequently Asked Questions (FAQ) for clinical trials, and what the process involves. Read more here: http://bit.ly/1j4TxSt…

OneRepublic’s video begins with an intimate look into Warnecke’s daily treatment regimen for the disease, and is complemented by interview sequences where he outlines the history of his diagnosis, as well as the challenges and realities he faces both now and in the future. Continue reading: http://bit.ly/1PQSZtO…

Gifted Life is committed to support and nurture transplant recipients, their family and friends and to promote organ donation and has recently posted this video about what not to say to someone living with a chronic illness such as cystic fibrosis. Learn more about CF.

Spyryx Biosciences, Inc., a private bio-pharmaceutical firm advancing new therapeutics to address obstructive lung diseases, recently announced it has received an award from Cystic Fibrosis Foundation Therapeutics that will provide support to the development of Spyryx’s therapeutic peptides to address cystic fibrosis. “We appreciate the generous support of the Cystic Fibrosis…

The Cystic Fibrosis Trust recently announced its first-ever appointment of a “Director of Impact” to spearhead the organization’s commitment to improve care, support and research for those with CF in the United Kingdom. Dr. Keith Brownlee boasts a proven record of experience and expertise as a cystic fibrosis specialist pediatrician, having worked for more than 20…

CARSTAR Automotive Canada Inc. is encouraging Canadians to promote CARSTAR’s Great Strides™ Walk for Cystic Fibrosis Canada through the social media hashtag #AWorldWithoutCF throughout the month of May. The goal is to raise funds to support research and treatments to address cystic fibrosis (CF). CARSTAR is celebrating its first…

Advanced Inhalation Therapies Ltd (AIT), an anti-microbial therapeutic company, recently announced that the European Commission, acting on recommendations from the Committee for Orphan Medicinal Products of the European Medicines Agency, has granted orphan medicinal product designation to the firm’s proprietary high dose formulation of nitric oxide (NO), AIT-CF, to address the treatment…

The Mauli Ola Foundation (MOF) will launch its 2015 tour to honor Cystic Fibrosis Awareness Month in May with the first Surf Experience Day (SED) in Waikiki, Hawaii having just kicked off this last weekend on May 2, 2015. Sunny Garcia, the MOF Ambassador, has partnered with Hyatt Regency Waikiki…