Valiant Voice – a Column by Lara Govendo

Lara, 33, resides in Vermont (for now) as a wild, adventure enthusiast who holds a master’s degree in mental health counseling. She writes about living out loud and develops educational programs to restore hope to those in need. Thanks to her double-lung transplant in 2017 due to cystic fibrosis, you can now find Lara traveling on the regular, exploring the glorious outdoors, and belly laughing with her loves. She’s passionate about connecting with like-minded people, so join her at www.laragovendo.com and on social media (“Lungs4Lovey”) while she flies by the seat of her (no) pants.

How to hurt someone with chronic illness by a few choice words

I’m so tired of some people’s responses to my suffering. I understand that some people might not get what I’m going through if they don’t have personal experience living with chronic illness. But I’d think they wouldn’t voice an opinion on something they know nothing about. Unfortunately, that’s not the…

What I look for when I’m on a search for doctors

I have a love-hate relationship with doctors. Being born with cystic fibrosis (CF) has afforded me the opportunity to have experiences with several doctors throughout my life. Having a double-lung transplant seven years ago further opened a plethora of doctors’ doors. Both health circumstances have given me profound…

There are plenty of reasons why my life is rare

Several pieces of my life puzzle happen to be rare. First thing’s first: I have cystic fibrosis (CF), a rare disease that affects about 40,000 people in the United States. (The U.S. Food and Drug Administration considers a disease rare if it affects fewer than 200,000 people.)…

My birthdays bring fresh hope every year

I just celebrated another year on this planet in December. My birthday has become a time of deep reflection as I age with cystic fibrosis (CF), sprinkling in an added layer of life with a double-lung transplant. Now I’ve turned 38; I’m growing older. I don’t have gray hair…

Why I wish people wouldn’t search cystic fibrosis online

What is cystic fibrosis (CF)? I get asked this question on the regular. My automatic response is: Please don’t search it online. No, really. Just don’t. I equate searching CF online to looking up your symptoms when you’re sick: Both typically result in death. (That’s dark humor.) But truly,…

A new diagnosis validates my mysterious breathlessness

Since my double-lung transplant seven years ago, I’ve struggled with breathlessness during exercise. I was used to this symptom while living with cystic fibrosis (CF) lungs, but I didn’t expect to deal with it post-transplant. It’s been frustrating that I can’t use my healthy lungs in the capacity that…