This is part of a series about living with invisible illness for Cystic Fibrosis Awareness Month. Go here to read more. People don’t need to explain themselves when they need to take a lunch break to eat or sleep after a long day. That would be exhausting. How much more exhausting…
Due to the invisible nature of cystic fibrosis (CF), many people with the disease feel unseen in their challenges. To mark CF Awareness Month, we partnered with patient advocate Brad Dell to create a series of articles — released each Thursday in May — about how to make those struggles known and build supports that lighten the burden.
This piece is part of a series about living with invisible illness for Cystic Fibrosis Awareness Month. Read more here. While cystic fibrosis (CF) is an invisible illness, it can be heard. That trademark gurgling, wet, productive CF cough sets many on edge because the cause remains invisible.
Living with cystic fibrosis means battling invisible fatigue and the weight of social assumptions others can’t see — or begin to understand. Raising awareness helps replace judgment with empathy, support, and connection.
Cystic fibrosis affects far more than just the lungs, but symptoms beyond breathing trouble often go overlooked or dismissed. Here’s how to advocate for the full picture of your health — and ensure you get the comprehensive care and attention you deserve.
Explaining cystic fibrosis on the fly isn’t always easy — but having the right words can help others understand this invisible illness. Here are simple ways to advocate for yourself in any situation.
Disclosing cystic fibrosis at work can feel daunting, but knowing your rights and preparing the right conversation can ease the process. Here’s how to advocate for the accommodations you need to succeed.
Living with cystic fibrosis can feel isolating, but learning to ask for help shouldn’t add to the burden. Here’s how to build a reliable support system that lightens your load and helps you thrive.
Balancing cystic fibrosis and school life isn’t easy, but having the right accommodations and support systems in place can make all the difference. Here’s how to advocate for the tools you need to succeed and safeguard your education at every stage.
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