Community Videos

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Protecting your child’s health, and your peace, during the holidays

Jen Chamberlain shares what it’s like to parent a young child with cystic fibrosis during the holidays — from balancing…

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Building a career in social work while navigating CF

Jenny Livingston shares how starting a new therapy for cystic fibrosis (CF) transformed her health, allowing her to go to…

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Filmmaker, author shares stories of life with cystic fibrosis

Ashley Wilson shares her journey with cystic fibrosis (CF), from long hospital stays and a CF liver disease diagnosis to…

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Finding confidence, self-advocacy as college student with CF

Nicole Kohr shares her journey living with cystic fibrosis while navigating college. She reflects on letting go of Broadway ambitions,…

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From speaking up to shaping change in the CF community

Tré LaRosa shares his journey as a writer and advocate living with cystic fibrosis, from navigating barriers to accessing treatment…

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Lara’s CF story: Talking about our struggles can help others

Lara Govendo shares her journey with cystic fibrosis, from navigating the challenges of a double-lung transplant to embracing vulnerability through…

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Della Anne’s CF travel tips: Mailing meds and masking up

Della Anne shares her experience living with cystic fibrosis while pursuing her love of travel. She talks about the challenges…

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Brad and Maile’s CF love story: “Long distance was to our advantage”

Brad and Maile Tatsuno-Dell tell the story of their relationship, from meeting through a mutual friend to eventually getting married.…

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