September 20, 2019September 20, 2019
LCI Is Sensitive Lung Function Parameter in Patients with Mild CF, Study Says
cystic fibrosis, News
The lung clearance index (LCI) is more sensitive to changes in lung function in patients with mild cystic fibrosis ... Read more
September 19, 2019September 19, 2019
1st Biosimilar of Dornase Alfa Inhalation Solution for CF Approved in Russia, Companies Announce
News
A biosimilar of dornase alfa inhalation solution, with the same therapeutic activity as Pulmozyme, its reference therapy, was ... Read more
September 18, 2019September 18, 2019
Progress for Cystic Fibrosis [INFOGRAPHIC]
News
Share this infographic on your site! Please include attribution to ... Read more
September 18, 2019September 18, 2019
Translate Bio Prioritizes Development of CF Therapy MRT5005, Other Lung Disease Candidates
News
Translate Bio is going to focus on the development of potential therapies to treat pulmonary diseases, including its lead ... Read more
September 17, 2019September 17, 2019
Prenatal Testing for Cystic Fibrosis Influences Pregnancy Outcomes, Review Finds
News
Prenatal genetic testing for cystic fibrosis (CF) significantly influences how women manage their pregnancies, with positive tests linked ... Read more
September 16, 2019September 12, 2019
Our Colons Need Your Help
Columns, Life in the Grey: a Column by Bailey Anne Vincent
This column is about colons. Someone needs to be studying the prevalence of colorectal conundrums in people with CF ... Read more
September 16, 2019September 12, 2019
Reflecting on the First Year of My Column, ‘Mutations & Conversations’
Columns, Mutations & Conversations - a Column by Tré LaRosa
This column was my first official writing gig. I started my blog almost three years ago, but my posts ... Read more
September 16, 2019September 16, 2019
Armata Announces New Treatment Candidate for P. Aeruginosa Infections in CF Patients
News
Armata Pharmaceuticals is going to target multidrug-resistant Pseudomonas aeruginosa infections in cystic fibrosis (CF) patients with its new ... Read more
September 13, 2019September 13, 2019
New Agreement in Scotland Grants CF Patients Access to Orkambi and Symkevi
News
A new agreement will give people in Scotland with cystic fibrosis access to the CF combination treatments Orkambi ( ... Read more
September 12, 2019September 12, 2019
Safety, Early Effectiveness of POL6014 Confirmed in Phase 1 Trial
News
Single dosing of orally inhaled POL6014, an experimental therapy to treat chronic lung inflammation, can effectively block the ... Read more
September 11, 2019September 11, 2019
ICER Seeking Feedback on CF Treatments from Stakeholders
News
The clinical effectiveness and cost-benefit of several cystic fibrosis (CF) therapies will be the focus of a final evidence ... Read more
September 10, 2019September 5, 2019
I Don’t Identify with the Word Disabled
Columns, Life in the Grey: a Column by Bailey Anne Vincent
I’m going to say something many people won’t like: I struggle with the word “disability.” In the eyes of ... Read more

LCI Is Sensitive Lung Function Parameter in Patients with Mild CF, Study Says

cystic fibrosis, News

The lung clearance index (LCI) is more sensitive to changes in lung function in patients with mild cystic fibrosis (CF) than conventional spirometry parameters, a study asserts. The findings ... Read more

September 19, 2019September 19, 2019

1st Biosimilar of Dornase Alfa Inhalation Solution for CF Approved in Russia, Companies Announce

News

A biosimilar of dornase alfa inhalation solution, with the same therapeutic activity as Pulmozyme, its reference therapy, was approved for use in Russia, Selexis and Generium Pharmaceutical announced. A biosimilar is like ... Read more

September 18, 2019September 18, 2019

Progress for Cystic Fibrosis [INFOGRAPHIC]

News

Share this infographic on your site! Please include attribution to www.cysticfibrosisnewstoday.com with this graphic. <br ... Read more

September 18, 2019September 18, 2019

Translate Bio Prioritizes Development of CF Therapy MRT5005, Other Lung Disease Candidates

News

Translate Bio is going to focus on the development of potential therapies to treat pulmonary diseases, including its lead candidate, MRT5005, targeting the underlying cause of cystic fibrosis (CF), the company announced. ... Read more

September 17, 2019September 17, 2019

Prenatal Testing for Cystic Fibrosis Influences Pregnancy Outcomes, Review Finds

News

Prenatal genetic testing for cystic fibrosis (CF) significantly influences how women manage their pregnancies, with positive tests linked to high rates of pregnancy terminations, a systematic review study finds. ... Read more

September 16, 2019September 12, 2019

Our Colons Need Your Help

Columns, Life in the Grey: a Column by Bailey Anne Vincent

This column is about colons. Someone needs to be studying the prevalence of colorectal conundrums in people with CF and correlated diseases, especially those in their late 20s and ... Read more

September 16, 2019September 12, 2019

Reflecting on the First Year of My Column, ‘Mutations & Conversations’

Columns, Mutations & Conversations - a Column by Tré LaRosa

This column was my first official writing gig. I started my blog almost three years ago, but my posts were inconsistent and didn’t have a clear voice. “Mutations & ... Read more

September 16, 2019September 16, 2019

Armata Announces New Treatment Candidate for P. Aeruginosa Infections in CF Patients

News

Armata Pharmaceuticals is going to target multidrug-resistant Pseudomonas aeruginosa infections in cystic fibrosis (CF) patients with its new enhanced bacteriophage candidate AP-PA02, the company announced. AP-PA02 is being developed to ... Read more

September 13, 2019September 13, 2019

New Agreement in Scotland Grants CF Patients Access to Orkambi and Symkevi

News

A new agreement will give people in Scotland with cystic fibrosis access to the CF combination treatments Orkambi (lumacaftor/ivacaftor) and Symkevi (tezacaftor/ivacaftor) through the country’s health system, according to ... Read more

September 12, 2019September 12, 2019

Safety, Early Effectiveness of POL6014 Confirmed in Phase 1 Trial

News

Single dosing of orally inhaled POL6014, an experimental therapy to treat chronic lung inflammation, can effectively block the activity of a pro-inflammatory enzyme in the lungs of people with ... Read more

September 11, 2019September 11, 2019

ICER Seeking Feedback on CF Treatments from Stakeholders

News

The clinical effectiveness and cost-benefit of several cystic fibrosis (CF) therapies will be the focus of a final evidence report by the Institute for Clinical and Economic Review (ICER), ... Read more

September 10, 2019September 5, 2019

I Don’t Identify with the Word Disabled

Columns, Life in the Grey: a Column by Bailey Anne Vincent

I’m going to say something many people won’t like: I struggle with the word “disability.” In the eyes of society, I am technically “disabled,” but that doesn’t stop me ... Read more