April 18, 2019April 17, 2019
Can We Take a Minute to Rest?
Columns, Work that Works - a Column by Elly Aylwin-Foster
Reader, I am tired. I don’t need to explain how that feels to those who have cystic fibrosis (CF), ... Read more
April 18, 2019April 18, 2019
New Test Could Lead to Effectively Customizing Treatments for CF Patients, Study Contends
cystic fibrosis
A simple new test may help identify which CFTR modulators are more effective for treating individual patients with ... Read more
April 17, 2019April 18, 2019
How I’ve Found Purpose Without Having a Full-time Job
Columns, This Lung Life - a Column by Ella Balasa
Our society places great emphasis on success through careers. Whenever we meet a stranger, one of the first questions ... Read more
April 17, 2019April 17, 2019
CF ‘Mom Guilt’ Is Hard, but My Best Is Good Enough
Columns, Modern CF Mama - a Column by Janeil Whitworth
“Up, up, up!” my 1-year-old said to me the other day with both hands reaching to the sky. I ... Read more
April 17, 2019April 17, 2019
Starting Kalydeco Treatment Before Birth May Help Halt CF Progression Post-Birth, Animal Study Suggests
cystic fibrosis, News
Treating an animal model of cystic fibrosis (CF) with Kalydeco (ivacaftor) during embryonic development and after birth revealed ... Read more
April 16, 2019April 16, 2019
Early Antibiotic Treatment Better to Eradicate New MRSA Infections in CF Patients, Study Suggests
cystic fibrosis, News
Using antibiotics to fully eliminate new methicillin-resistant Staphylococcus aureus (MRSA) airway infections appears more effective than waiting for ... Read more
April 15, 2019April 12, 2019
My Personal Paradox Sets the Bar Higher and Higher
Columns, Mutations & Conversations - a Column by Tré LaRosa
I have a productivity complex: I feel like if I’m not being productive, I’m wasting my time. And yet, ... Read more
April 15, 2019April 15, 2019
Incidence of Liver Disease and Cirrhosis Climbing in CF Patients, UK Registry Study Says
cystic fibrosis, News
A higher incidence of liver disease was found in people with cystic fibrosis (CF) in the U.K., according to a ... Read more
April 12, 2019April 11, 2019
How to Be a Supermodel When You’re Scared, Sad, and Scarred
Columns, Life in the Grey: a Column by Bailey Anne Vincent
I am becoming a supermodel. OK, not really. But, perhaps I can pretend? I’m traveling to New York with ... Read more
April 12, 2019April 11, 2019
Modulating Reality: My Miracle CF Med Was All Hype
Becoming Visible by Elizabeth Rogers, Columns
I’ve spent most of my life hearing that the cure for cystic fibrosis is just around the corner. Just ... Read more
April 12, 2019April 12, 2019
Synspira’s CF Therapy Candidate SNSP113 Granted Orphan Drug Status in EU
cystic fibrosis, News
Synspira Therapeutics’s candidate for treating cystic fibrosis, SNSP113, has received orphan drug designation from the European Medicines’ Agency (EMA) in the ... Read more
April 11, 2019April 10, 2019
Does Having CF Affect a Career Negatively or Positively?
Columns, Work that Works - a Column by Elly Aylwin-Foster
I’ve written recently about getting more feedback and input from the CF community for this column. I love ... Read more

April 18, 2019April 17, 2019

Can We Take a Minute to Rest?

Columns, Work that Works - a Column by Elly Aylwin-Foster

Reader, I am tired. I don’t need to explain how that feels to those who have cystic fibrosis (CF), but for the benefit of others, I will. It’s a ... Read more

April 18, 2019April 18, 2019

New Test Could Lead to Effectively Customizing Treatments for CF Patients, Study Contends

cystic fibrosis

A simple new test may help identify which CFTR modulators are more effective for treating individual patients with cystic fibrosis (CF), early results from a pilot study show. The ... Read more

April 17, 2019April 18, 2019

How I’ve Found Purpose Without Having a Full-time Job

Columns, This Lung Life - a Column by Ella Balasa

Our society places great emphasis on success through careers. Whenever we meet a stranger, one of the first questions we ask is, “What do you do?” I feel this ... Read more

April 17, 2019April 17, 2019

CF ‘Mom Guilt’ Is Hard, but My Best Is Good Enough

Columns, Modern CF Mama - a Column by Janeil Whitworth

“Up, up, up!” my 1-year-old said to me the other day with both hands reaching to the sky. I was having a really bad day, and I was tired and ... Read more

April 17, 2019April 17, 2019

Starting Kalydeco Treatment Before Birth May Help Halt CF Progression Post-Birth, Animal Study Suggests

cystic fibrosis, News

Treating an animal model of cystic fibrosis (CF) with Kalydeco (ivacaftor) during embryonic development and after birth revealed that early treatment improved pancreatic function, delayed lung disease, and reduced infections, ... Read more

April 16, 2019April 16, 2019

Early Antibiotic Treatment Better to Eradicate New MRSA Infections in CF Patients, Study Suggests

cystic fibrosis, News

Using antibiotics to fully eliminate new methicillin-resistant Staphylococcus aureus (MRSA) airway infections appears more effective than waiting for the infection to pass naturally in patients with cystic fibrosis (CF), a ... Read more

April 15, 2019April 12, 2019

My Personal Paradox Sets the Bar Higher and Higher

Columns, Mutations & Conversations - a Column by Tré LaRosa

I have a productivity complex: I feel like if I’m not being productive, I’m wasting my time. And yet, whenever I accomplish something, I don’t bask in the enjoyment ... Read more

April 15, 2019April 15, 2019

Incidence of Liver Disease and Cirrhosis Climbing in CF Patients, UK Registry Study Says

cystic fibrosis, News

A higher incidence of liver disease was found in people with cystic fibrosis (CF) in the U.K., according to a large cohort registry study. As liver disease is the third ... Read more

April 12, 2019April 11, 2019

How to Be a Supermodel When You’re Scared, Sad, and Scarred

Columns, Life in the Grey: a Column by Bailey Anne Vincent

I am becoming a supermodel. OK, not really. But, perhaps I can pretend? I’m traveling to New York with my daughter to take part in a beauty campaign for ... Read more

April 12, 2019April 11, 2019

Modulating Reality: My Miracle CF Med Was All Hype

Becoming Visible by Elizabeth Rogers, Columns

I’ve spent most of my life hearing that the cure for cystic fibrosis is just around the corner. Just wait a few more years, they keep saying, and it’s ... Read more

April 12, 2019April 12, 2019

Synspira’s CF Therapy Candidate SNSP113 Granted Orphan Drug Status in EU

cystic fibrosis, News

Synspira Therapeutics’s candidate for treating cystic fibrosis, SNSP113, has received orphan drug designation from the European Medicines’ Agency (EMA) in the European Union. The status was granted by the EMA’s Committee ... Read more

April 11, 2019April 10, 2019

Does Having CF Affect a Career Negatively or Positively?

Columns, Work that Works - a Column by Elly Aylwin-Foster

I’ve written recently about getting more feedback and input from the CF community for this column. I love sharing my journey with you, but I’m only one person. Through ... Read more