May 18, 2020May 18, 2020

Antibiotic-resistant S. Maltophilia Spread Worldwide, Carry Diverse Genes, Study Reports

cystic fibrosis, News

The antibiotic-resistant bacterium Stenotrophomonas maltophilia, a dangerous bacteria for people with lung diseases such as cystic fibrosis (CF), is widely spread around the world, with most strains carrying virulence ... Read more

May 15, 2020May 15, 2020

How Trefoil Proteins Act to Thicken Mucus Detailed in Study

cystic fibrosis, News

Researchers identified a biochemical mechanism that regulates the thickness of mucus, and could serve as a target of new treatments for chronic respiratory illnesses that include cystic fibrosis (CF). The study, ... Read more

May 14, 2020May 13, 2020

The Story Behind Awareness

Columns, Valiant Voice – a Column by Lara Govendo

Each time I meet someone new, CF pours from my mouth. It has become impossible to negate that intricate piece of who I am. Cystic fibrosis isn’t my whole ... Read more

May 14, 2020May 14, 2020

CF Awareness Month Activities Varied, But Virtual, This Year

cystic fibrosis, News

While the COVID-19 outbreak has turned Cystic Fibrosis Foundation (CFF) activities into online events, Cystic Fibrosis Awareness Month continues to move forward, and with an emphasis on patient stories and education. ... Read more

May 13, 2020May 13, 2020

Phase 1b Study of CB-280 for CF Chronic Lung Infections May Open by September

cystic fibrosis

Calithera Biosciences announced plans to open by September a first clinical study of its oral investigational therapy CB-280 in people with cystic fibrosis (CF). The Phase 1b, dose-escalating trial (NCT04279769) in ... Read more

May 12, 2020May 8, 2020

How to Be Forgotten in 800 Words or Less

Columns, Life in the Grey – a Column by Bailey Anne Vincent

By the time you finish reading this, you’ll have forgotten me. I worry about being forgotten more than I should. I’ve lost countless friends whom I remember at odd ... Read more

May 12, 2020May 8, 2020

Stuck Between Nostalgia and Reality

Columns, Victorious - a Column by Brad Dell

“I love the smell of napalm in the morning,” said Lt. Col. Bill Kilgore. He proceeded to describe bombing a hill, and how the resulting carnage “smelled like victory.” ... Read more

May 12, 2020May 12, 2020

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

News, syndicated

The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the COVID-19 outbreak is affecting people with rare diseases, their families, and caregivers. ... Read more

May 12, 2020May 12, 2020

Gene Therapy, KB407, Seen to Restore CFTR Protein in Cell Studies

cystic fibrosis, News

A potential gene therapy for cystic fibrosis, KB407, is able to induce the expression of normal CFTR protein in cell models of CF, its developer, Krystal Biotech, reports. These ... Read more

May 11, 2020May 11, 2020

Researchers Develop Promising Antibiotic Molecule for Drug-resistant Lung Infections

cystic fibrosis, News

A man-made antibiotic able to fight drug-resistant bacteria in the lungs with minimal toxicity to a person’s cells may be a promising approach to eliminate lung infections, such as ... Read more

May 8, 2020May 8, 2020

Trikafta Very Effective CF Therapy, But Still Too Costly, ICER Reports

cystic fibrosis

The Institute for Clinical and Economic Review (ICER) granted the therapy Trikafta the highest evidence rating (an “A”) for the treatment of cystic fibrosis (CF) in patients with either two copies the ... Read more

May 7, 2020May 7, 2020

CF Foundation, Beam Partner to Offer Free Online Exercise Classes

cystic fibrosis, News

The Cystic Fibrosis Foundation (CFF) is sponsoring free access to Beam, an online exercise platform that provides a variety of live and on-demand classes tailored for people with cystic fibrosis (CF), ... Read more