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Medical Centers
Center for Cystic Fibrosis for Adult Care at the Keck School of Medicine
Cystic Fibrosis Center at Stanford is an integrated disease management program that follows patients from diagnosis through adulthood
Cystic Fibrosis Center from the Children’s National Health System is a level III CF center, a Cystic Fibrosis Foundation designated care center and the only one in Washington, DC
Cystic Fibrosis Clinic at University of Texas Southwestern Medical Center
Gunnar Esiason Adult Cystic Fibrosis and Lung Program in New York
Maine Medical Center (MMC) is a CF teaching center accredited by the Cystic Fibrosis Foundation
Mike McMorris Cystic Fibrosis Research and Care Center at Children’s Hospital Colorado
Nebraska Regional Cystic Fibrosis Center, located at both Children’s Hospital & Medical Center and the University of Nebraska Medical Center (UNMC), is the only Cystic Fibrosis Foundation accredited center in the region
University of California San Francisco (UCSF) Cystic Fibrosis Center, certified by the national Cystic Fibrosis Foundation
University of Chicago Cystic Fibrosis Center
University of Mississippi Medical Center’s Cystic Fibrosis Center
Organizations and Foundations
Blooming Rose Foundation was created to give hope to families immediately following cystic fibrosis diagnosis
Boomer Esiason Foundation is named after the retired American football quarterback Norman Julius “Boomer” Esiason that suffers from the disease and works to raise awareness and funding for the CF community
Breathe 4 Tomorrow Foundation‘s mission is to “make life for those living with Cystic Fibrosis easier one breath at a time,” and the organization is focused on helping CF families with their financial struggles
Cystic Fibrosis Foundation is the largest non-profit organization in the country focused on finding a cure for cystic fibrosis
Cystic Fibrosis Foundation Therapeutics, Inc. is the CF Foundation’s nonprofit drug discovery and development affiliate
Cystic Fibrosis Lifestyle Foundation was founded in 2003 to help patients increase their quality of life through exercise, mentor support and social interaction
Cystic Fibrosis-Reaching Out Foundation is an all-volunteer benevolent organization to help CF patients and families with financial and educational resources
Cystic Fibrosis Research, Inc. dedicates to funding scientific investigation to find a cure, as well as more effective treatment for CF
Elizabeth Nash Foundation was created in 2003 to honor the life and death of the CF sufferer Elizabeth Nash and it helps support CF programs and research
Emily’s Entourage is a nonprofit organization that raises awareness and funding to help find a cure for rare mutations of cystic fibrosis
Help One Love One provides nutritional support to adults with cystic fibrosis who receive treatment at the University of Minnesota Cystic Fibrosis Center
Liv for a Cure works to support research and find a cure for CF
Lungs for Life Foundation dedicates to providing education and support to the cystic fibrosis and lung transplant communities
Mauli Ola Foundation is based in Hawaii and offers children with CF an alternative and fun form of treatment with surf lessons
National Cystic Fibrosis Awareness Committee helps to advance the public awareness of the genetic disease through statements
Rock CF Foundation is a nonprofit corporation, founded and led by Emily Schaller with the purpose of increasing the quality of life for people with CF
Take A Breather Foundation works since 2012 to fulfill wishes for children living with cystic fibrosis
Cystic Fibrosis Worldwide is a non-profit organization based in Massachusetts, USA and Izmir, Turkey, which works with 67 member countries since 2002 to increase information on CF
Cystic Fibrosis Trust is the only UK-wide charity focused on both helping patients with cystic fibrosis and supporting research in the field
Pharmaceutical Companies
Vertex Pharmaceuticals – Orkambi and Kalydeco (Ivacaftor)
Online Resources
CF2Chat is a forum and chat website for people with cystic fibrosis, featuring as well news, therapy and health tips, a photo gallery and a recipe page
CF Infants and Toddlers is a social media group for parents and caregivers of children with CF to share information and seek support
CF Living offers webcasts and other resources for parents of children with cystic fibrosis in different stages of growth
CF Roundtable provides information to adults with cystic fibrosis on the nature and progression of the disease, as well as on the latest research advancements
CF Solutions offers pharmacy and nursing services to patients with financial difficulties in Oklahoma
CysticFibrosis.com is an online community for people concerned with cystic fibrosis and it provides interactive forums and blogs to find support and share information
Cystic Fibrosis Coping Skills is a non-profitable online course designed by the Mayo Clinic to provide information on diagnosis and treatment of CF
Cystic-L is a free email service designed for exachanging information and support specific about cystic fibrosis, including not only patients, but also families and loved ones
Cystic Life is an online community for patients to find other struggling with the same condition
Daily Strength is a on online support group for patients with CF
Heroes of Hope is a project sponsored by Genentech that recognizes and salutes unique individuals with cystic fibrosis who strive to live full, productive lives and serve as role models to others
IME Video Library — Reducing Isolation: An Adult Cystic Fibrosis Support Group is a video series about a support group and coping with the disease, sponsored by the University of Wisconsin-Madison
News For Parents is a website that offers basic information, expert advice, and the latest news on advancements to treat CF
Starbright World is an online community for teens with cystic fibrosis or other serious medical conditions
Other Related Resources
American Association of People with Disabilities
American Disability Association
disABILITY Information and Resources
Disabled Peoples’ International
Liam Foundation works to provide children with special needs access to camps with typical kids
National Center for Complementary and Alternative Medicine
National Organization for Rare Disorders (NORD)
National Rehabilitation Information Center (NARIC)
National Transplant Assistance Fund provides financial support to cover uninsured medical procedures related to transplantation
Well Spouse Association to support spouses of patients with chronic diseases
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