• Adults​ ​With​ ​CF

  Monday Shoutout: Rare Disease UK

  Posted by Jenny Livingston on November 1, 2021 at 1:32 pm

  Shout Out to Rare Disease UK!

  

  @RareDiseaseUK works on a variety of issues that families and individuals with genetic conditions face. They aim to provide information, support families and influence the services needed by patients. They also work to include patient voices to debates that matter to the chronic disease community. ⠀
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  Rare Disease UK’s work falls into different categories: reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education. ⠀
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  To learn more about Rare Disease UK’s work, visit their website. ⠀

  Jenny Livingston replied 3 years ago 0 Member · 0 Replies

  • Monday Shoutout
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