In 2013, someone approached me in clinic and asked if I wanted to participate in a clinical trial. I didn’t have a clue what I was getting into, but the appointment schedule wasn’t too rigorous and I didn’t have much else going on at the time, so I agreed.
The first trial was very short-term, but it led to other amazing opportunities. I was soon asked to participate in a trial for a CFTR modulator, which ended up being Orkambi. (I wrote about how this trial changed my life here.) Since then, I’ve participated in clinical trials as often as I am able to. It’s one of my favorite things, which might sound a little funny, but it’s true!
I love being able to participate in research! I’ve learned how invaluable the results of these trials are, and it feels good knowing that I’m helping make a difference. Also, I see my doctor more regularly when I’m in a study, which means we keep an even closer eye on my health, and it’s helped strengthen our relationship and mutual trust.
If you’re interested, you can use the Clinical Trials Finder on cff.org to find a trial in your area. Or talk to someone at clinic to see if there are trials taking place at your center.
Have you participated in clinical trials? If so, what has your experience been?
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