• Posted by Kevin Schaefer on March 5, 2026 at 8:42 am

    Hello, CF community!

    Rare Disease Day took place at the end of February. This is a nationally recognized event to raise awareness for a wide range of rare disease communities.

    Bionews, the parent company of this website, put together a page and a series of videos. Contributors for this are from different communities, and they discussed a range of topics related to living with rare diseases. Check out this series here.

    Did you recognize Rare Disease Day? If so, how? Are there any other advocacy events or organizations you participate in throughout the year?

    replied 4 days, 10 hours ago 1 Member · 0 Replies
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