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  • Mixed Emotions Regarding Trikafta

    Posted by Kevin Schaefer on April 3, 2020 at 7:00 am

    Hey everyone! Hope you all made it through this week ok. Everyone managing quarantine life?

    So I wanted to share Wendy’s latest column with you all. I found this piece to be both enlightening and relatable. When the first FDA-approved treatment for my disease went on the market, I had similar feelings as Wendy did about Trikafta. She writes about everything from survivor’s guilt, to the wave of emotions that come with starting a new treatment.

    It’s like you spend your entire life surviving and managing your CF symptoms. Then suddenly, a treatment comes along, and your perception of where your life is headed changes drastically. It’s a lot to take in!

    Do you agree with Wendy? Do you have any other thoughts regarding Trikafta? 

    Kevin Schaefer replied 4 years, 8 months ago 0 Member · 0 Replies
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