Must we always focus so intently on CF life expectancy?
In this column, I want to discuss something that’s been bothering me for a long time, so I’ll just go ahead and say it: I despise the fact that the topics of age and…
Living Beyond — Jennifer Bleecher
Jennifer Bleecher, diagnosed with cystic fibrosis in her first few days of life, has been defying the odds of her disease for the majority of her life. She has a daughter, worked as a nurse for 20 years, and then received the gift of life through a bilateral lung transplant in 2020 during the pandemic. Jennifer is the self-published author of a children’s picture book, “The Friendship Umbrella,” which teaches about being kind, helping others, and appreciating each other’s differences. Jennifer loves dogs and music, has a strong faith in God, and has always chosen to count her blessings instead of her struggles.
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Has using a mask with my nebulizer treatments benefited my sinuses?
Note: This column describes the author’s own experiences with using masks during nebulizer treatments. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. I haven’t…
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My holiday self-care toolkit keeps me happy and healthy
So many things need to be done during the hustle and bustle of the holiday season. Gift lists need to be made, cookies need to be baked, decorations must be hung, and meals need…
Remembering 2 furry companions who were my ‘best medicine’
Last week, I had to say goodbye to my best friend, my 11-year-old dog, Blaze. He had been battling a mast cell cancer tumor on his jaw. As pet owners know, making the decision…
Finding my purpose in this empty nest after my lung transplant
The Merriam-Webster Dictionary defines identity as “the distinguishing character or personality of an individual.” Having a genetic, progressive, and life-shortening disease such as cystic fibrosis (CF) can consume a large part of…
Exercise has played a crucial role in my life with cystic fibrosis
We all know that exercise plays an important role in physical and mental health. But as someone with cystic fibrosis (CF), I believe that exercise is as vital as the medicines I…
Setting boundaries and finding balance in life with cystic fibrosis
They say hindsight is 20/20. Now that I’m in my 50s, I can reflect on my younger years and realize that I was trying to do too much. I was spinning all of the…
Why I hope invisible diseases will one day be fully recognized
A long list of medical conditions can be considered invisible because others can’t see their effects. Those of us living with cystic fibrosis (CF) understand the idea well since we commonly hear…
How my daughter and I use mindfulness for anxiety, and life
In 2014, when my daughter was entering her freshman year of college, I watched a segment of the TV news program “60 Minutes” that changed my life. In the segment, presenter Anderson Cooper…
I experience all the emotions on my transplant ‘lungaversary’
Labor Day weekend means many things. It celebrates the achievements of the American worker while also marking the end of summer vacation and the start of a new school year. And to me, it’s…
7 habits that helped me comply with my CF treatment regimen
Having two rare mutations that cause my cystic fibrosis (CF) has been a small blessing for me. It’s true that I’m unable to participate in many clinical trials that might have…
4 CF-related health issues I tackled during my pregnancy
In 1994, I was 24 years old and engaged to be married. My health was good despite my cystic fibrosis (CF). My doctor hadn’t mentioned anything about family planning, so I decided…
I’m slowly learning to share my life with cystic fibrosis and transplant
My mother was recently cleaning out her attic, trying out the minimalist technique she’d seen on a Netflix show. In the process of deciding which items still bring her joy, she gathered a bag…
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