Being in a relationship with someone who has CF can be tricky, whether as a co-worker, friend, partner, or family member. It can be hard to know exactly what to do to support them when you aren’t sure what they are going through. Following is a list of simple acts…
Modern CF Mama
— Janeil Whitworth
Janeil Whitworth is a Cleveland native, coffee-drinking, flower-picking, cystic fibrosis fighter. She is living out her wildest dream as a wife and mother to the sweetest baby boy, Fenn, all while managing her health and sanity. She enjoys sharing the incredibly messy and joyful highs and lows of living with a chronic illness on her personal blog, Flowerlungs.
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“Up, up, up!” my 1-year-old said to me the other day with both hands reaching to the sky. I was having a really bad day, and I was tired and achy from long coughing attacks and chronic pain. “Mommy can’t right now, buddy,” I said. The letdown on his face…
Janeil Whitworth -- Modern CF Mama
Two Christmases ago, my husband gave me a gift certificate for a massage. This week, I finally scheduled my first massage and cashed in the expiring gift. The timing felt designed, as my body is aching from inflammation and lugging around a 10-month-old baby boy one-third my size. I even…
We all have those days with CF when the coughing is nonstop and the energy has fizzled long before the clock sounds noon. Unfortunately, low-energy days don’t magically retract our responsibility to lend a hand around the house. Maybe you are a parent chasing chaotic babies and tripping over blocks…
Let’s make this very clear: I don’t think I need to defend myself when it comes to the decisions that I make in my life with cystic fibrosis. However, I am a firm believer in the idea that with a greater understanding of others’ experiences comes greater empathy, and finally,…
I’m no stranger to home IV antibiotics. Actually, if I am being completely honest, I think we have gotten a little too friendly over the past decade or so. I prefer to do home IVs because I am one of those patients who goes a little nuts after being trapped…
Before the food-splattered kitchen floors, overly enthusiastic smiles, and nursery rhymes; before babbling “dadas” or “mamas” filled our living spaces; and before the arrival of my blond-haired, blue-eyed baby-treasure, there was just me. I am a college graduate sorority girl and an eternal optimist who is constantly sipping my glass-half-full…
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