Let’s Talk About What a CF Cure Really Means
If you read my column last week, you know I care a lot about the interpretation of words. The word “cure” holds tremendous gravity in the cystic fibrosis community and for scientists. It’s…
Mutations & Conversations
— Tré LaRosa
Tré is a 27-year-old living with cystic fibrosis in Pensacola, Florida who works as a research lead for Bionews Insights. He is an extremely passionate advocate for disabled rights and people living with chronic disease, especially cystic fibrosis. His sister, Alyssa, died at 29 due to chronic rejection of her bilateral lung transplant, pushing him further into the fight for a better world for all. “Mutations & Conversations” discusses the science and sociology that binds us all. He also loves his golden retriever, Duncan, very much.
Featured Post
Searching for Motivation as I Struggle With Depression
When I took Advanced Placement psychology in high school, a few subjects stuck out to me as being intuitive. I was weirded out by this because the majority of school lessons were not intuitive.
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Please Don’t Label Me as Sick
Speaking as a writer: Words wield heavy power. Our written and spoken words are capable of mightiness. They can impart life-changing wisdom or inflict pain, whether intentionally or unintentionally. I feel I must be…
Is It Our Responsibility to Educate Others About CF?
I’ve noticed that there are two schools of thought in the CF community about discussing our life with a chronic disease. The first: If we expect others to be considerate and respectful of our…
What Does It Mean to Be ‘Normal’?
A strange reality of living with cystic fibrosis (CF) is that we’re usually the only person with the disease we actively, directly engage with, aside from maybe siblings. The many aspects of routine CF…
Grieving in an ‘Always Online’ World
“So right now we live on borrowed time, I don’t know how long or what is to come in the next few months.” My sister Alyssa posted this sentence in a Facebook update…
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