Jennifer Chamberlain is a wife and the mother of two. Her youngest child was diagnosed with cystic fibrosis while in the NICU. Jennifer has always been passionate about writing, majoring in English in college and teaching a creative writing workshop to middle school students upon graduation. She went on to receive her law degree and is currently a practicing attorney. A Southern California native, you can find her at the beach, planning her next trip, or teaching Pilates in her free time.
Note: This column describes the author’s own experiences with Trikafta (ivacaftor, tezacaftor, and elexacaftor). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Recently, we experienced a miracle. Or…
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Dear fellow parents, After a long summer, it’s finally time to send our kids back to school. Trust me, I’m just as excited as you to have some quiet in my house. But I’m also incredibly nervous. While…
The thought of having a critically ill child never crossed my mind until it actually happened. I’d hear or see stories about sick children fighting for their lives on television commercials and social media, but I never imagined I’d…
“Is your child OK?” These perfectly well-meaning words from a stranger cut deep for me. Claire had just finished having a coughing fit in public on a recent road trip when a woman approached us. She introduced herself as…
I am not an athlete by any means. But I recently signed up to participate in a hiking fundraiser for the Cystic Fibrosis Foundation. Normally, I participate in a yearly walking fundraiser, but I had to choose another…
I never thought a diagnosis could bring me comfort after our daughter, Claire, was diagnosed with cystic fibrosis (CF) at 3 weeks old, which shattered me. But that is exactly what happened when our son, Connor, was…
The release of the movie “Five Feet Apart” was being publicized during my pregnancy with our second child, Claire, who we’d just learned would potentially inherit cystic fibrosis (CF). I’d never heard of the disease until around…
By the time I was 25, I had studied abroad three times and traveled Australia alone for eight weeks. I always had wanderlust and a level of independence that allowed for it. When our daughter Claire was born with…
Before cystic fibrosis (CF) entered our lives, my social circle consisted mainly of my elementary and high school friends. I was the last one of our group to have children and the first to have a child with…
“It’s a great time to be born with cystic fibrosis.” I remember hearing this sentence from the head nurse during the first clinic of our daughter, Claire. At the time, it felt like they were just words meant…
When my daughter, Claire, was in the neonatal intensive care unit, I was lead counsel on a case that had made its way to federal court. I prepared for the case at Claire’s bedside between breaks of the nurses…
Recently, an expectant father reached out to me on social media after receiving a prenatal cystic fibrosis (CF) diagnosis. He told me that he was so grateful to our family for sharing our journey and giving other families…
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