When the Holidays Aren’t Merry and Bright
Every night when I came home from caring for our daughter in the neonatal intensive care unit (NICU), I would gather our mail to sort through it. It was a task I used to distract myself and make life…
Raising Rare — Jennifer Chamberlain
Jennifer Chamberlain is a wife and the mother of two. Her youngest child was diagnosed with cystic fibrosis while in the NICU. Jennifer has always been passionate about writing, majoring in English in college and teaching a creative writing workshop to middle school students upon graduation. She went on to receive her law degree and is currently a practicing attorney. A Southern California native, you can find her at the beach, planning her next trip, or teaching Pilates in her free time.
Featured Post
Gratitude and grief can coexist in cystic fibrosis parenting
“I want to have a baby girl with pink hair and a baby boy when I’m a mommy,” my daughter, Claire, boldly announced as I was cooking dinner the other night. She’s a lot like other 5-year-olds, dreaming of…
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The Unpredictability of CF Taught Me How to Let Go
“How is this possible? We did everything right!” I couldn’t comprehend what my daughter Claire’s pulmonologist was telling me at her quarterly cystic fibrosis (CF) clinic visit. He explained that her most recent chest X-rays showed signs of…
The Birthday Blues: A CF Caregiver’s Perspective on PTSD
My chest tightens and I feel a lump in my throat as I try to race past the hospital where my daughter was born. Soon after Claire’s birth, she was transferred by ambulance from this very hospital to…
Exposing the Outside World to Our Family’s Cystic Fibrosis Journey
“Intense.” That was the word our friend used to describe our daughter’s daily cystic fibrosis (CF) care routine. We were on the last day of a weeklong group vacation, spending every waking moment together. Prior to this trip,…
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