Meet “Our Cystic Fibrosis Journey!”
UPDATE 06/17/2016
One of the Our Cystic Fibrosis Journey youtubers reached out to us letting us know the following:
“Sorry all, due to differences in the group the channel is no longer active. The original group creators have also decided to delete all of the content that was on this channel. Very unfortunate, and hoping to bring back something like this in the future.“
https://www.youtube.com/watch?v=AV-cfcUlMXU
Some of your favorite youtubers will now post on the new Our Cystic Fibrosis Journey channel and share more cystic fibrosis stories with you.
Each day a different youtuber will post their stories and struggles with CF.
- Monday: Shianne (ShianneBreathes)
- Tuesday: Taylor (Taylor Puckett)
- Wednesday: Larry (Learn more about Larry Brian’s story here)
- Thursday: Miranda (Watch the 6 months on Orkambi update by Miranda Porche here )
- Friday: Bailey (See what it’s like to be a Salty Girl in the eyes of Bailey Anne Vincent here)
- Saturday: Megan
- Sunday: Siobhan (CysticFibrosis Fighter)
To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs
Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz
Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.