Bad Clinic Visits: It’s Not Just the Numbers
No matter how good I feel, there’s always a sense of anxiety and uncertainty when I walk into a routine CF clinic visit. Thoughts swarm my head as my name is called to…
The Patient’s Perspective – Reid D’Amico
At the time of writing this column, Reid had started his PhD in biomedical engineering at Vanderbilt University. He uses an engineering approach to research pulmonary hypertension. Reid has CF, and finds much of his drive by experiencing both the research and patient aspects of cystic fibrosis. Reid has also served as a director at the U.S. Adult Cystic Fibrosis Association.
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The Epithelium Sodium Channel and Cystic Fibrosis
Cystic fibrosis is a complicated disease. As patients, we are taught that mutations in our cystic fibrosis transmembrane conductance regulator (CFTR) proteins are what lead to many of our…
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Reid D'Amico -- The Patient's Perspective
Five Tips for Flying with Cystic Fibrosis
Airports can be stressful. With the unpredictable delays, cancellations, and upsets of travel, it’s only natural to take some precautions before going on a business trip or vacation. However, preparing for travel…
Lost Wisdom from the Pediatric Cystic Fibrosis Clinic
For the first time, we see that about 50% of people with cystic fibrosis (CF) are adults. While CF still may ring as a pediatric disease to those who have been familiar with CF…
Keep an Eye on the ACA and Share Your CF Stories
By now, we’ve all heard that steps have been taken toward repealing the Affordable Care Act (ACA). Even within my network of friends and family, I’ve heard mixed responses. There are those who detest…
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