Image

https://www.youtube.com/watch?v=485S0QC5ckE “Last year I went on a journey all over America while maintaining my Cystic Fibrosis care with new mobile medical devices. I am currently working on completely an in depth documentary about the challenges I faced, places I went and equipment I used on the trip.” Follow Beau Rich’s journey…

Searching for information on ‪#PseudomonasAeruginosa? Read the most relevant articles here: https://bit.ly/1LiKW4E  …

Meet the 15 year-old Furches Twins, as they talk about their struggles dealing with Cystic Fibrosis. Ask questions and share your knowledge of Cystic Fibrosis in our forums. Follow her journey here: https://bit.ly/1VAjOnw…

According to the Cystic Fibrosis Trust, living with cystic fibrosis (CF) is a lifetime challenge that involves a strict, daily regimen of drugs, time-consuming physiotherapy and the risk of infection that can critically escalate at any time. In spite of the odds, singer and CF’er Bianca Nicholas is…

Check out the Frequently Asked Questions (FAQ) for clinical trials, and what the process involves. Read more here: https://bit.ly/1j4TxSt…

Orkambi is a combination therapy for treatment of cystic fibrosis. The FDA approval for the therapy was announced on July 2nd, 2015. Learn all about it here: https://bit.ly/1jCoQUT…

OneRepublic’s video begins with an intimate look into Warnecke’s daily treatment regimen for the disease, and is complemented by interview sequences where he outlines the history of his diagnosis, as well as the challenges and realities he faces both now and in the future. Continue reading: https://bit.ly/1PQSZtO…

Remembering Jennifer’s story, the amazing woman who, unfortunately, lost the battle against Cystic Fibrosis after 23 years of fighting. Read the full article here: https://bit.ly/1jAqRRu…

Gifted Life is committed to support and nurture transplant recipients, their family and friends and to promote organ donation and has recently posted this video about what not to say to someone living with a chronic illness such as cystic fibrosis. Learn more about CF.