Living With CF Does Not Make Me a Hero
In a 1993 commercial for Nike, NBA star and 1992 Olympics hero Charles Barkley declared, “I am not a role model.” The commercial was controversial and garnered backlash, but Barkley was right.
Understanding Nonsense — William Ryan
William Ryan is an adult with cystic fibrosis and cystic fibrosis-related diabetes. William is from Bayonne, New Jersey, a small peninsula city roughly 20 minutes from New York City. Along with being a columnist, he works in local government helping senior citizens, disabled citizens, and veterans. He was diagnosed with CF in early 1993. He has a rare mutation of CF, mostly affecting his digestive system rather than his respiratory system. William and his wife, Gina, have two dogs, Otis and Ruby. He hopes you’ll enjoy reading his columns as much as Otis and Ruby do.
Featured Post
Working through the trauma of pulmonary function testing
I can still envision it: The top half of the wall was painted a shade of beige, while the bottom half was covered in blue wallpaper with white stripes. That’s how I remember the…
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I’m Determined to Meet the Challenges of Living With Cystic Fibrosis
“This can’t be happening right now.” It was freezing outside, and once again I was in a daze, talking to my doctor while planning a trip. It was the second time, albeit for different…
My Tenacity in Responding to CF Hardships Comes From One Place: New Jersey
When I try to understand the complexities of cystic fibrosis (CF), it often feels like trying to get through Newark Liberty International Airport: What am I doing, how did I get here, and…
Welcome to ‘Understanding Nonsense,’ About My Life With CF
Nonsense can be defined as “an instance of absurd action.” That’s kind of how doctors described my cystic fibrosis (CF) mutations. It was as if my mom hit the New York Lottery and…
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