Brad Dell is Deaf and was diagnosed with cystic fibrosis at 2 months old in 1993. He received a double-lung transplant from UC San Francisco in January 2017, then cochlear implants nine months later. He lives in Hawaii, where he was raised. Usually he’s traveling the world, chugging coffee, or devouring books. He also pastors Restoration Community Church and serves as the director of community content at Bionews, this site’s publisher.
I’ve been trying to write more. I promise. But my tacrolimus dose is pretty up there, and it’s getting on my nerves. Literally. Nerve pain from the medication, an immunosuppressant used in lung transplant management, has me…
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I really did think it’d be my last Christmas. Sure, I was on the lung transplant list, but the doctors said I’d have to wait months before donor lungs became available. I was daily coughing up chunks of green…
“It’s not very romantic, swaddled in sweaty, soiled hospital blankets. It’s slow, it’s ugly. And it could happen to anyone — anyone — and likely will if they don’t meet a sudden, violent end. People don’t like to confront…
When things fell apart, I screamed at God to glue me back together again. I’d been struck deaf, and putty clogged my lungs — airways literally gurgled when I inhaled. I puked several times daily between the panic…
Out of 120 columns, my most controversial remains “Sugar Does the Trick, But I Won’t Let It Trick Me.” In the May 2018 piece, I critiqued the classic dietary advice that suggests people with cystic fibrosis should stack…
My message is simple: It is a systemic injustice, even ableist, to heap unbearable financial burdens on people with disabilities (PwD). Before I continue: This column doesn’t critique political parties or provide solutions; it raises red flags so…
She seemed cool and collected when her big surgery date was confirmed. And the next day, Britt seemed better than fine — super, even. She was a blond blur of energy, a real firecracker, flinging jokes…
Editor’s note: The following contains spoilers of the film “Sound of Metal.” I yearn for the days I drew close, very close, to death. Each thought, emotion, and sight weighed heavy. And each breath was precious; who knew…
It’s not my birthday or my lung transplant anniversary or anything. But today, I’m thinking about being old-ish. I’m thinking about how Mom realized my life expectancy in college biology, and how I realized it in middle school…
I’ve been in love. It was magnificent. It also hurt. Love belongs among the most powerful building blocks of our cosmos. Passion drives creation, compassion nurtures it. Blend the two for love. Tragically, I’ve found that adding a sick…
I’ve often written that “the disease itself isn’t the worst part, rather it’s the …” The medication side effects, the childhood trauma, the dread, the blah, blah, blah. Today, it’s the social exclusion. Post-transplant, I’m not very excluded.
At the start of November, I was infected with COVID-19. My heart rammed repeatedly and rapidly against my sternum, which had been broken four years earlier by lung transplant surgeons. I was dizzy, reeling from the local health department’s…
Two months ago, I watched myself die, then get resurrected on television. Sort of. I used to interview fascinating people in Hawaii for local magazines. I’d never imagined I’d be profiled, much less through a documentary. But there…
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