Meet Morgan Grindstaff, also known as Cystik1. He is 25 years and has been battling Cystic Fibrosis. Listen him recite a strong and emotional spoken word piece about his struggle.
Also, if you would like to watch him document his Orkambi Journey, see the video below.
Learn all about Orkambi (lumacaftor/ivacaftor) here: http://bit.ly/1jCoQUT
If you wish to learn more about Cystic Fibrosis enter here: http://bit.ly/1QltnFs
#sickkid problems! So a heart wrenching truth! Thank you andreia piexoto and Morgan grindstaff for showing a new angle of education for the masses! Absolutely beautiful
Morgan, I know we haven’t meet but a couple of times, and I’m not even sure you even know who I am. I am your grand-father’s brother. I just wanted to let you know that I have watched your videos and am very impressed with your comments. I have often thought of you and the struggles you have gone through your entire life. Ever time I see your father (Howard) I “Always” ask about you. Even though you and I barely know each other, I just wanted to say that I love you and have always said a prayer for you. You are one strong willed man and I am truly proud of you for what you are doing with these videos to let the world know what CF is and the struggles you and others endure on a daily basis. Your Uncle, Ralph Grindstaff