Posts by: Tré LaRosa

Tré LaRosa

Tré LaRosa is a 24-year-old scientist and writer living with cystic fibrosis in Cincinnati, OH. He enjoys exercising, writing, and spending time with his beloved son, a mini Golden Retriever named Duncan.

January 14, 2019January 10, 2019

Let’s Use the Cystic Fibrosis News Today Forums for Empowerment

Columns, Mutations & Conversations - a Column by Tré LaRosa

I ecstatically joined Cystic Fibrosis News Today in September because it was my first major opportunity to generate CF discussion. In this column, I’ve written about what a cure ... Read more

January 7, 2019January 14, 2019

Empowering Children by Educating Them About Their CF

Columns, Mutations & Conversations - a Column by Tré LaRosa

One of my earliest memories from elementary school was leaving class a little early before lunch to go to the nurse’s office to take my enzymes, always accompanied by ... Read more

December 17, 2018December 14, 2018

How Should We Approach Milestones While Grieving?

Columns, Mutations & Conversations - a Column by Tré LaRosa

When Serena Lawrence, the late BioNews senior columns editor, responded to my email about potentially writing for Cystic Fibrosis News Today and promptly offered me a columnist position, I was ... Read more

December 10, 2018December 6, 2018

People with Rare Diseases Are Humans, Not Commodities

Columns, Mutations & Conversations - a Column by Tré LaRosa

If you keep up with CF research, you may have seen the news about Phase 3 of the triple combination Vertex therapies. In these results, patients had a robust ... Read more

December 3, 2018November 29, 2018

For the First Time, I’m Feeling Thankless This Holiday Season

Columns, Mutations & Conversations - a Column by Tré LaRosa

The period between Halloween and New Year’s — what I usually call “the Holidays” — is the time of year I’ve always most enjoyed. Christmas music, chilly weather, early ... Read more

November 26, 2018November 20, 2018

Thanking the Care Teams of Chronic Disease Patients

Columns, Mutations & Conversations - a Column by Tré LaRosa

As I’ve grown older, I’ve become a self-advocate, taking initiative when possible. I’ve developed a close relationship with my care team, which I believe is crucial for adults with ... Read more

November 19, 2018November 16, 2018

The Bittersweet Downside of CFTR Modulators

Columns, Mutations & Conversations - a Column by Tré LaRosa

I’ve been on Orkambi (lumacaftor/ivacaftor), a cystic fibrosis transmembrane conductance regulator (CFTR) modulator, for just over three years now. My lung function has remained stable during that time. CFTR ... Read more

November 12, 2018November 8, 2018

Exciting Revelations from the NACFC 2018 Poster Sessions, Part 3

Columns, Mutations & Conversations - a Column by Tré LaRosa

Last in a series. Read part one and part two. The poster sessions at the North American Cystic Fibrosis Conference (NACFC) in Denver last month included many interesting branches of the ... Read more

November 5, 2018November 8, 2018

Exciting Revelations from the NACFC 2018 Poster Sessions, Part 2

Columns, Mutations & Conversations - a Column by Tré LaRosa

Second in a series. Read part one. The poster sessions at the North American Cystic Fibrosis Conference (NACFC) in Denver last month included many interesting branches of the wonderful ... Read more

November 1, 2018November 8, 2018

Exciting Revelations from the NACFC 2018 Poster Sessions, Part 1

Columns, Mutations & Conversations - a Column by Tré LaRosa

First in a series. The poster sessions at the North American Cystic Fibrosis Conference (NACFC) in Denver this month included many interesting branches of the wonderful world of CF ... Read more

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