6 Tips for Caring for a Family Member with Cystic Fibrosis

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2. Caring for a Child: Medication and Therapies

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Particularly with small children, caregivers are responsible for giving patients their medication and helping with therapies. Taking care of a child with cystic fibrosis when healthy is a task that can take between one and two hours daily, including medicines and airway clearance. When the child experiences exacerbation of the disease or suffers from any other condition, the time raises and the patient may need IV medication.

Due to the demands of caring for children with a chronic disease, in some cases, one of the parents stops working or they seek professional help. Daily care and treatments vary among children, but it can include lung clearance therapies like chest physiotherapy (CPT) and vest therapy, bronchodilators, steroids, anti-inflammatory medicines, or antibiotics. In addition, patients need to take enzymes, mineral and vitamin supplements to help with digestion and calorie absorption.

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One comment

  1. Deb Haupert says:

    ACOG recommends pre conceptual testing for all women. Committee Opinion #486.
    Family history need not be present to have a child with CF or a child who is a CF carrier.
    Newborn screening does not identify all carriers.

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