6. Coping with CF in a Loved One: How Not to Be Alone
The most important thing for parents of children with cystic fibrosis is to remember they are not alone. Other parents share the same experiences, challenges, and emotional issues. There are support groups not only for patients but also for caregivers, in which people can share their experiences and hear others’. Organizations and specialized CF centers can help find support. Engaging with the work of organizations and speaking out about the disease can also help families gain new hope and lessen their sense of aloneness.
Understanding that cystic fibrosis is a life-long disease with constant changes can be the first step to dealing with it and recognizing that long-term help is needed. In addition, parents should understand that the development of cystic fibrosis occurs when two faulty genes are inherited. This does not mean all siblings will suffer from it, but it is recommended that parents get tested to see if they carry CF and knowing what the probabilities are before having more children.
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Note: Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
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