9 Famous Cystic Fibrosis Patients


7. Gunnar Esiason

Gunnar Esiason is the son of former football player and star Boomer Esiason. Gunnar, who is now 24-years-old, was diagnosed at birth with cystic fibrosis. Regardless of the disease, he grew up surrounded by sports, practicing football, lacrosse, ice hockey, golf and more. Gunnar’s parents, Boomer and Cheryl, decided not only to focus on helping their son but also on helping others fight the disease. With this hope, the family created the Boomer Esiason Foundation (BEF), which funds research and supports the CF community.

“Because of BEF, I have been able to reach out to the CF community and try to reassure everyone who has been affected by this disease that CF isn’t the end of the world, if they don’t want it to be. That has been my main goal,” said Gunnar, who is currently studying at Boston College. “I want to try and have the most ‘normal’ college experience possible. I hope to graduate on time, and then potentially move on to post-graduate studies.” Given the improvements in life expectancy for patients with cystic fibrosis, all the family is optimistic. “I believe that we are experiencing something of a medical miracle now in cystic fibrosis research,” added Boomer Esiason. “I fully expect Gunnar to outlive me.”

Here are six organizations doing remarkable work either in research or alongside patients and their families which you can help directly or bring awareness to.

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