The Cystic Fibrosis Foundation has a series of videos aimed at helping parents with children who have been recently diagnosed with cystic fibrosis.
The videos cover all aspects of care within the first year of diagnosis and look at the emotional impact as well as how to manage the physical aspects of the disease. Parents of children with cystic fibrosis describe their reactions to diagnosis and talk about how they coped in the first few months. In addition, they also offer advice for giving enzymes to infants, how to perform airway clearance techniques on babies, and nutrition tips.
The final video in the series is an adult with cystic fibrosis explaining how she coped growing up with the disease, the challenges she faced, and how she accomplished her personal milestones.
Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.