10 Cystic Fibrosis Research Priorities for Patients
Medical research is important to improve treatments and hopefully find a cure for cystic fibrosis, but what do patients think scientists should be working on? The University of Nottingham conducted a survey among patients and healthcare professionals to find out what they thought were the most important areas cystic fibrosis researchers should be concentrating on.
Here are the results:
Simplifying treatment: How can the treatment burden of cystic fibrosis patients be simplified?
Treating GI symptoms: How can GI symptoms such as bloating, nausea and stomach pain be eased in cystic fibrosis patients?
Preventing lung disease progression: Which treatments are effective for cystic fibrosis patients in preventing or delaying lung disease progression in early life?
Non-tuberculous mycobacterium: How best to treat non-tuberculous mycobacterium (NTM) in cystic fibrosis, which medications to use and when to start the treatment?
Treatment adherence: What effective methods of support, motivation, and technology can help CF patients improve their adherence to treatment?
CF-related diabetes: How can CF-related diabetes be prevented?
Chest physiotherapy: Could chest physiotherapy be replaced by exercise for CF patients?
Antibiotic use: Which combinations of antibiotics are best for CF exacerbations and what are the dosing plans? Should these be rotated?
Antibiotic resistance: Can the negative effects of antibiotics such as side effects and resistance risk be reduced in CF patients?
Pseudomonas Aeruginosa: How can Pseudomonas aeruginosa be eradicated in CF patients?
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