In honor of Cystic Fibrosis Awareness Month, we’ve put together a few must-see videos from people in the CF community who are helping to raise awareness of cystic fibrosis.
MORE: May is #CFAwarenessMonth
In this video from Ashley’s Roses, Ashley talks about ways that people can raise awareness of cystic fibrosis during Cystic Fibrosis Awareness Month. She suggests wearing purple and roses, using social media to share information about the disease, or participating in a local Great Strides event. Ashley also explains the significance of “65 Roses.”
Colezy’s Corner talks about some of the things that are happening in the U.K. for Cystic Fibrosis Awareness Month and all the ways the Cystic Fibrosis Trust in the U.K. helps those living with the disease.
Olivia Jane uses Cystic Fibrosis Awareness Month as an opportunity to explain what cystic fibrosis is and how it affects those who live with the disease. She talks about some of the medications she needs to take on a daily basis and the chest physiotherapy she needs to do each day to clear her lungs.
Samantha Carrier uses Cystic Fibrosis Awareness Month to share what life is like for her five-month-old daughter Daisy who was diagnosed with cystic fibrosis at two weeks old. Samantha explains what the disease is, makes a plea for donations so CF charities can continue investing in vital research, and asks the public to put pressure on the government to allow access to medications that are currently being denied.
In this video from KSBW Action News, Melissa Pappageorgas and her father Chris talk about the annual college football bowl they host to raise money for their non-profit organization, the Living Breath Foundation. Melissa and her brother were both diagnosed with cystic fibrosis fairly late in life, at 14 and 16 respectively. Melissa, who underwent a double lung transplant last year, wants to raise awareness of the disease so that more people understand how devastating it can be.
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