Photo courtesy of Sicily Russo Day 30 of 31 This is Sicily Russo’s story: My name is Sicily Russo, I’m 15, and I was diagnosed with cystic fibrosis (CF) when I was 9 months old. Since I was little, I knew my life was much different from that…
31 Days of CF
Every day in May, we will feature a story from someone in the cystic fibrosis community to mark Cystic Fibrosis Awareness Month. At the end of the month, our goal is to have a collection of stories that represent different perspectives on life with CF that help to inspire and empower our readers. Follow along with the series here or visit us on Facebook and Instagram, using the hashtag #31DaysofCF.
Fizzy Clark’s son, Felton, 4, takes digestive enzymes to help him absorb nutrients and gain weight. (Courtesy of Faith “Fizzy” Clark) Day 31 of 31 This is Faith “Fizzy” Clark’s (@thefizzbit) story: Imagine looking at your newborn child and having a gut…
Photo courtesy of Rachel Reschke Day 29 of 31 This is Rachel Reschke’s story: Hello! My name is Rachel and I am 29 years old. Growing up, I was compliant with my cystic fibrosis (CF) regimen but there was one thing I despised and avoided:…
Bautista Torres (Photo courtesy of Jessica Torres) Day 28 of 31 This is Jessica Torres (@jessi.v.torres) and Bautista’s story: Cystic fibrosis entered our lives without permission, turning everything upside down. After a more than weeklong hospitalization with oxygen for acute bronchitis, Bautista (then almost 3 years old)…
Shannah Weller (Photo courtesy of Shannah Weller) Day 27 of 31 This is Shannah Weller’s (@shannahweller) story: On Jan. 20, 2019, my sister Jana left this world behind and gained an eternal one. She fought hard for her health and quality of life, and inspired…
Katie Lockwood and her 8-week-old daughter, Magnolia. (Courtesy of Katie Lockwood) Day 21 of 31 This is Katie Lockwood’s (@chronicallyillfinanciallyfit) story: Growing up with cystic fibrosis, I still had a lot to be grateful for. I grew up surrounded by love. Family and friends encircled…
Paul Jordaans and his lovely wife, Debbie. Photo courtesy of Paul Jordaans Day 25 of 31 This is Paul Jordaans’ story: Being born with cystic fibrosis (CF) in 1963 provided my mind with a clear story about my almost nonexistent future. I soon lost interest…
Photo courtesy of Ashley Wilson Day 24 of 31 This is Ashley Wilson’s story: “I want to live life to the fullest.” This is a common phrase, but how many people actually live by it? I think that everyone with cystic fibrosis can relate to…
Photo courtesy of Maggie Ronayne Day 23 of 31 This is Maggie Ronayne’s story: Hi, my name is Maggie! I’m 26 years old and from Southeast Michigan. I always like to take the month of May, which is Cystic Fibrosis Awareness Month, to reflect. Having…
Elizabeth Knight with her partner, Antonio Dominguez, and service dog in training, Piper. (Courtesy of Elizabeth Knight) Day 22 of 31 This is Elizabeth Knight’s (@65roses_poodle) story: This is my story about cystic fibrosis and seizures. Although I’ve always had CF, I started having…
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