Every day in May, we will feature a story from someone in the cystic fibrosis community to mark Cystic Fibrosis Awareness Month. At the end of the month, our goal is to have a collection of stories that represent different perspectives on life with CF that help to inspire and empower our readers. Follow along with the series here or visit us on Facebook and Instagram, using the hashtag #31DaysofCF.
Fizzy Clark’s son, Felton, 4, takes digestive enzymes to help him absorb nutrients and gain weight. (Courtesy of Faith “Fizzy” Clark) Day 31 of 31 This is Faith “Fizzy” Clark’s (@thefizzbit)…
Read morePhoto courtesy of Lauren Michele Day 11 of 31 This is Lauren Michele’s story: Hey, y’all! I’m Lauren Michele, and I’m a 23-year-old cystic fibrosis (CF) patient from Dallas. I was diagnosed with CF at 5 months old,…
Joanie and Jorge Santander. Photo courtesy of Joanie Santander Day 10 of 31 This is Joanie Santander’s story: While everyone around me was having what we in the cystic fibrosis (CF) community refer to as…
Photo courtesy of Jenny Humphries Day 9 of 31 This is Jenny Humphries’ story: I’ve always been a planner. I don’t make a purchase without researching every possible option. If I’m going on a trip, you better believe…
Stephanie Stavros, her son Grey, and husband, Jim (Courtesy of Stephanie Stavros) Day 8 of 31 This is Stephanie Stavros’s story: It’s been my experience that living with cystic fibrosis (CF) requires that you…
From left, Winry and Cheyenne Sowder. Photo courtesy of Winry Sowder Day 7 of 31 This is Cheyenne and Winry Sowder’s (@thetinyrose) story: In 2016, at just 21 days old, my daughter, Winry, was…
Craig and his wife Robyn pose with their son. Photo courtesy of Craig Jones Day 6 of 31 This is Craig Jones’ story: My name is Craig Jones. I am 37 years old, from England, and I have CF.
Photo courtesy of Amber Dawkins Day 5 of 31 This is Amber Dawkins’ story: There are 182 pills, neatly organized in a plastic container, the days of the week labeled in bold on each of the small sections. Just…
Photo courtesy of Jen Kyle Day 4 of 31 This is Jen Kyle’s story: When I was diagnosed at age 37, I was at the height of my teaching career and newly married. It was a blow…
Photo courtesy of Wes Hawkins Day 3 of 31: This is Wes Hawkins’ story: “You can control the disease, or you can let the disease control you.” Powerful words that my cystic fibrosis specialist told my parents when…
Photo courtesy of Jamie Rudnycky Day 2 of 31 This is Jamie Rudnycky’s story: Cystic fibrosis (CF) is unique to our family in that we had a life with our child before the disease appeared. We…
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