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In this video by the Boomer Esiason Foundation, we hear from 24-year-old Gunnar Esiason. “He discusses how important it is for people with cystic fibrosis to remain compliant – with their medications, treatments, nutrition, and exercise.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs…

Eva Markvoort was a young woman who blogged about her fight with cystic fibrosis. At the age of 25, Eva sadly passed away. Watch the video above to remember some of her words of strength. Eva also left behind a documentary – 65_RedRoses. To watch the trailer and learn more…

Holly, 22, suffers from cystic fibrosis. Her life expectancy is only to 25 to 30-years-old without a double lung transplant. Will Holly get her call and a “second chance at life”? This short documentary film by Emily Mitchell and Jess Pardoe follows Holly Van Geffen and her battle with cystic fibrosis while…

In this Cystic Fibrosis Trust CF News edition, learn more about the “campaign for precision medicines in Scotland, why the Queen’s University Belfast is on the cusp of a giant research leap, how Ciara Hillyer’s “What is CF” video gets her on the…

Remember the amazing “I’ve Got Cystic Fibrosis” song from Charles Michael Duke? Well, now he’s back with a new video, this time talking about how to be a teenager with a chronic illness. “My tips and tricks for how to survive the teenage years when you have a…

Throughout the decades, numerous institutes, centers, and organizations have enabled key research achievements. Among them is the National Heart, Lung, and Blood Institute (NHLBI), which is part of the National Institutes of Health (NIH) and “is strongly committed to supporting research aimed at preventing and treating heart, lung,…

In this The Frey Life video, here’s Mary talking about her cystic fibrosis experience directly to kids going through the same. “If you’re a kid with cystic fibrosis or are a parent of a CF kid, Mary wants to encourage you to keep doing…

If you are one of the 15,000 adults aged 18 or older living with cystic fibrosis (CF) in the United States, we might have a big announcement for you. AbbVie, a global, research-based biopharmaceutical company formed in 2013 following separation from Abbott Laboratories, recently announced…

“Can’t See Sh*t” is a documentary which tells the story of Brendan Patrick, a cystic fibrosis patient who lost his sight due to complications with CF and medical ailments. “An artist loses his sight and gains vision. He is able to overcome his illness and build a new career while laughing…

Get to know Angela DeStasio‘s story and fight with her invisible illness: cystic fibrosis. “Cystic fibrosis is classified as an invisible disease, which means I look fully functioning but on the inside, a lot of things are going on.” To learn…