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In this The Digital Shore video, learn more about Sophie’s story and join then and the Cystic Fibrosis Foundation to help search for a cure. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…

In this The Frey Life video, watch the step by step process for accessing and de-accessing a port. “We take time to show you the proper way to stay sterile, and little tips and tricks we have learned during the ten years that I have been independent with my port care.”…

In this Boomer Esiason Foundation video, watch Jerry Cahill give an update on his double lung transplant and talk about the way his life has changed since he had the procedure 4 years ago. Learn more about Jerry Cahill  in his Up 4 Air…

May is cystic fibrosis awareness month. Here are six organizations which are doing major work either in research or alongside patients and their families that you can help directly or bring awareness to during this month. Cystic Fibrosis Foundation (CFF) “The Cystic Fibrosis Foundation is the leading organization committed…

Meet the Take a Breather Foundation. Their goal is “to allow children living with cystic fibrosis, along with their families, to ‘take a breather’ from CF and focus on creating lasting memories that will stay with them for a lifetime.” “Our name is actually our mission. We provide a ‘breather’ for…

Fight Like a Boss is a documentary that follows Nick DiBrizzi Jr., a cystic fibrosis patient, while he is waiting for his double lung transplant. “This story is one of love, support, hope, family and never giving up.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs…

In this Cystic Fibrosis Foundation video, hear why 54-year-old cystic fibrosis patient Linda Bowman participates in clinical trials. “We are on the road to finding a cure. And the more CF patients are involved in clinical trials the better, and the quicker and the faster it’s gonna come.   “…

In this video by Cystic Fibrosis Victoria, listen to Dr. Sean Fabri explain all about carrier screening, including the science behind it, its implications and the many options available for people who suffer from or carry cystic fibrosis. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs…

Cystic fibrosis (CF) is an inherited and chronic disease related to a defect in the cystic fibrosis transmembrane conductance regulator (CFTR) gene. Patients produce an abnormally high amount of sticky and thick mucus that accumulates around the organs, including the lungs, making it difficult for patients to breathe properly and…

Nick Talbot, a 40-year-old man living with cystic fibrosis, is attempting to become the first person with CF to ever climb the tallest mountain in the world – Mount Everest. “Hi my name’s Nick, I’m 40 and have cystic fibrosis. I’ve been really fortunate in life, I have a good career and…