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In this Cystic Fibrosis Foundation video, watch Ginny Drapeau, BSN, RN, CCRP, research coordinator at the Central Connecticut CF Center and manager of the Pathways to Lifelong Health DVD series, talk about living a healthy adult life with cystic fibrosis. “We hope that you will see that you are not alone as…

In this Gifted Life video, watch part two of a Q&A session about a transplant journey. “I had to give up a lot of things when I became very unwell, and the biggest thing of all was my independence. For me to ask people for help, for not just day…

In this Cystic Fibrosis Foundation video, learn more about the importance of having a support system. “There will be downturns, but it is in those times that everybody who loves you just comes through and helps you get you back on track” To learn more about cystic fibrosis,…

Remember the “I’ve Got Cystic Fibrosis” song? In this Cystic Fibrosis Trust video, watch its author and singer Charles Michael Duke, who also doubles as an actor and vlogging extraordinaire, talking about winning one of the Helen Barrett Bright Ideas awards. “Thank you so much to the Cystic Fibrosis Trust…

Cystic fibrosis (CF) is among the most common and severe genetic diseases in the United States, with about 1,000 new cases every year. The disease is caused by a defect in the cystic fibrosis transmembrane conductance regulator (CFTR) gene and it affects the secretory glands, which are responsible for the production…

In this Gifted Life video, watch Lauren answer eight questions regularly asked about her transplant journey. Stay updated on all the latest transplant news here. Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice,…

“My ultimate dream is to become a register dietitian/nutritionist and I would love to work with other cystic fibrosis patients to help them improve their quality of life through diet.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all…

“The fear of dying. People find it a really hard topic to talk about because you don’t want to think about that.  It is quite a scary thing.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest…

Cystic fibrosis is a life-threatening, genetic disease that affects patients’ ability to breathe and causes persistent lung infections. There is currently no cure for cystic fibrosis, but there are treatments designed to help patients maintain their health and have longer, more fulfilling lives. There are cystic fibrosis medications approved for patients with the disease,…

European researchers reported that a combination of two drugs, cysteamine and epigallocatechin gallate (EGCG), may be used to treat cystic fibrosis (CF) patients with specific mutations. The report, “A novel treatment of cystic fibrosis acting on-target: cysteamine plus epigallocatechin gallate for the autophagy-dependent rescue of class II-mutated CFTR,“ appeared on April…