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In this DKBmedLLC video, meet Amy, 30-years-old, who struggles with frequent illnesses and exacerbations. She feels her treatments are ineffective and that she’ll never have a normal life. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest…

https://www.youtube.com/watch?v=3daNMEnW1Kc Pseudomonas aeruginosa is the key causative agent of cystic fibrosis (CF) infections. This aerobic, gram-negative, opportunistic hospital pathogen can grow and proliferate in patients with a suppressed or compromised immune system, especially in hospitals and other healthcare settings. CF is a genetic disorder and passed on to offspring via…

In this video by the Cystic Fibrosis Foundation, “learn exactly how to read a newborn screening for cystic fibrosis, including how a CF diagnosis is made.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news…

Watch the Frey’s explaining how is day-to-day real life with cystic fibrosis for them. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…

Last week’s hot topic on Cystic Fibrosis titled Phase 3 Trial of Inhaled Antibiotic to Treat CF-related Lung Infections Supported by $20M in New Financing was written by Daniela Semedo. The article is focused on Savara Pharmaceuticals recently announcing that it has closed a $20 million Series C…

https://youtu.be/I-YKijMYH9s This video is the result of an assignment given to first year UCD Radiography & Medicine students for a module on Healthcare Imaging & Information Systems. The students created a resource to inform patients about the experience they could expect. Learn more about CF here: https://bit.ly/1nOGoQ2…

In this video by the Cystic Fibrosis Foundation, hear how Melissa Shiffman, an adult with CF, shares her personal story when she advocates for the disease. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here:…

Natalie Woolf, 7-time world champion exhibition dancer and recipient of the Carl Alan Award, didn’t want to disclose her fight with cystic fibrosis (CF) for fear of not being judged on merit, but by pity. Now, changed by CF, she shares her journey with the world and invites each of…

Meet Miranda Porche. People who suffer from rare diseases, like cystic fibrosis (CF), often have to spend a lot of time in and out of hospitals while doctors try to figure out what is wrong.  In this video, Miranda describes herself as a “professional guinea pig”. Learn more about…

  In this The CFurther “Empowering Self Care From a Young Age” webcast watch some “practical advice to caregivers on finding the right balance between shifting the responsibilities of managing cystic fibrosis (CF) treatments to their children, while still providing needed support. The expert panel includes Kat Quinn, mother to…