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  Last week’s hot topic on Cystic Fibrosis titled Potential Cystic Fibrosis Therapy Gets FDA Fast Track Approval, Clinical Tests to Follow was written by Carolina Henriques. The article is focused on the announcement by Proteostasis Therapeutics, Inc., that it recently received Fast Track Designation from the U.S. Food…

The Iron Boy saved Sydney and rescued a kidnapped Make a Wish reporter. Domenic, a 9-year-old Australian boy suffering from cystic fibrosis (CF), had his dream come true when he was transformed into his favorite superhero, flown by helicopter to Police Headquarters and defeated Ultron in a super secret mission. Domenic was…

https://youtu.be/-b1Q7PoNgxM Do you remember Caleigh Haber? A few months ago, we told you about Caleigh’s fight to breathe with cystic fibrosis (CF). Caleigh has now undergone transplant surgery and is the proud owner of a new pair of lungs. Find out what happened since. Keep update on all the latest CF…

Recently Lauren Rowe shared her personal story of one of the many downsides of dealing with an invisible illness. The story became a internet phenomenon with many people sharing the post wanting to raise more awareness to these hidden conditions that are not easy to deal with. Lauren has…

Gymnast Sonny Lang who had ‘heart and lungs of 80-year-old’ dies following brave Cystic Firbosis battle https://t.co/xdgrQt0Bhn — cf/Aware (@CFAware) February 9, 2016 Sonny Lang was diagnosed with cystic fibrosis (CF) when she was only 13 months old. At age four she…

In this video by the Cystic Fibrosis Trust, learn more about Ashley’s Story. Did you know one in three people with cystic fibrosis on the lung transplant waiting list will die while waiting for a donor lung? Ashley Harris Moore speaks about fears for her baby and herself and…

  Ever since high frequency chest wall oscillation (HFCWO) devices were developed to help patients with cystic fibrosis breathe easier, clinical researchers have required appropriate parameters to assess the efficacy of HFCWO-based therapies. It is common practice to look at three main indicators of pulmonary and overall health: mucus clearance…

In this video by the Cystic Fibrosis Foundation, “take an inside look at the daily life of Kaitlyn Broadhurst, a 25-year-old with CF, whose buoyant spirit helps her overcome personal challenges with the disease.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay…

  Contrary to previous research, in a study published in the journal BMC Pulmonary Medicine, scientists did not find any general elevated risk for anxiety and depression among patients with cystic fibrosis. Learn more here: https://bit.ly/1QmOfuv Keep up to date on cystic fibrosis news here: https://bit.ly/1nOGoQ2…

No two people living with cystic fibrosis are the same. In this video by the Cystic Fibrosis Trust, learn why they believe the future of cystic fibrosis treatment lies in personalized medicine. But as we move into the era of personalized medicines, you will need to know one key…