In this video by Marissa Parks, see what side effects she’s been dealing with while taking Orkambi. “I hope you enjoyed my video! If you have any questions about Orkambi or have a different experience please share! I would love to read how others are handling the side effects they’ve encountered.
According to the Daily Mail, singing Taylor Swift songs could help Ella, a 12-year-old girl with cystic fibrosis, to add years to her life and repair her damaged lungs. Last Monday Ella achieved another goal: she actually met her idol. Ella Sinclair from Queensland’s Sunshine Coast was…
In this video by SickKids, see how their “partnership with Cystic Fibrosis Canada is able to change the face of cystic fibrosis. Faces like Melissa Benoit’s”. To learn more about Cystic Fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here:…
Emily’s Entourage raises money and awareness to help find a cure for rare mutations of Cystic Fibrosis. Nearly 70,000 people worldwide with CF are waiting with bated breath for life-saving breakthroughs. They’re mobilizing friends, families and communities to join Emily’s Entourage on the quest for new treatments and a cure.
Want to win a toy AND have your picture on Christmas cards all over the country? Watch the video from the Cystic Fibrosis Trust to learn more about this Santa’s Christmas Card Competition. For more information access: https://bit.ly/1U6XOBz To learn more about Cystic Fibrosis, click here: https://bit.ly/1QltnFs…
In this video from Gifted Life, see spiffy solutions to those chronically ill needs on your bedside table. To learn more about Cystic Fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…
ProMetic Life Sciences Inc. announced plans to initiate a Phase 2 clinical trial to test its anti-fibrotic lead drug candidate PBI-4050 in cystic fibrosis (CF) patients with related diabetes as well as liver steatosis. Cystic fibrosis is a chronic disease of the lungs and, less frequently, of the pancreas, liver, kidneys, and gut,…
Read the Articles Here: Orkambi (lumacaftor/ivacaftor) For Cystic Fibrosis 60-Year-Old Art Scholar is Also a Cystic Fibrosis Fighter Pulmonary Function in CF Improves with High Frequency Chest Wall Oscillation…
https://www.youtube.com/watch?v=1mbDNM1aJQY In this video from nutrigrainau, meet Nathan Charles. He’s one of the most dynamic players in the Super Rugby Competition. And he was born with cystic fibrosis. To learn more about Cystic Fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest…
In this video from the Cystic Fibrosis Ireland, learn how people with Cystic Fibrosis strike the balance of living with and managing their condition in their day to day lives. In this clip we meet three very inspiring people with CF: Caroline, Malachy and Helen, who share their personal experiences…
Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.
Get regular updates to your inbox.