Author Archives: admin

9 Things You Shouldn’t Say to Someone With a Chronic Illness

It’s no surprise that sometimes people say things they don’t want to–or mean to. Especially when they’re talking to someone with a disease like cystic fibrosis, that is not fully understood by those who don’t live with it. To help you learn more about what you shouldn’t say to chronically…

Dating While Living With CF

In this podcast video made by Gunnar Esiason for the Boomer Esiason Foundation, Gunnar and Julia Rae talk about dating while living with cystic fibrosis (CF). Listen to the podcast where Gunnar and Julia talk about cross-infection risks for CF patients. This topic came from a…

What Is Cystic Fibrosis and How Does It Affect Me?

  This Demystifying Medicine animated video from McMaster University explains what cystic fibrosis (CF) is in a very simple way. According to the New York Times, “good decisions start with accurate information.” Learn more about the four most common misconceptions non-patients have about cystic…

10 Things Chronic Patients Do But Shouldn’t

Living with a chronic illness is never easy. When you get diagnosed with a disease that is going to be with you for the rest of your life such as cystic fibrosis (CF), you have to adapt to your new life. But how can you do that? What should…

7 Reasons Why Pulmonary Rehabilitation is Important

Pulmonary rehabilitation (PR) should be part of the treatment plan for any chronic lung disease, including cystic fibrosis. It’s a combination of exercise, breathing techniques, diet and education that aims to help give patients a better quality of life and be able to have more control of their symptoms. We’ve compiled…

9 Superfoods That Might Improve Your Health

With winter just around the corner, it’s time we all started to look after ourselves a little more. Avoiding germs is one thing, but we can also try and boost our immune systems by getting plenty of sleep and eating the right foods. Here are nine foods well-known for helping…

Exercising With CF: 4 Moves You Can Do From Home

Exercising and maintaining good health is encouraged for everyone, but when it comes to cystic fibrosis (CF) patients, regular exercise has been shown to have an even bigger impact. It’s believed that exercise can help reduce lung-function decline and help keep stress levels low and improve sleep. Here are four exercises…

How a Young Boy Makes Sick Children Smile

This Sewing Hope video from The Feed is all about the awesome Campbell Remess, a 12-year-old boy from Hobart, Tasmania, Australia. Unlike other boys his age, Campbell is not interested in playing video games or watching movies–he prefers to spend all of his free time hand-making teddy…

Journeying Across America With AffloVest

https://www.youtube.com/watch?v=2wEMLfSko_0 This video from AffloVest introduces CFer Beau Rich as he reflects on his journey across America. The 24-year-old from Florida traveled more than 20,000 miles and visited 20 states on his epic journey. Data shows Afflo Vest helps with air clearance in cystic fibrosis patients. Read more here. …


Featured Column

Words Between Worlds: Improving Cross-class Communication in Medical Spaces

A banner for Kate Delany's "Breathe and Believe" column that depicts a pair of lungs with flowers blossoming from them.
Columnist Kate Delany investigates how communication between patients, family members, and doctors is often shaped by class origins.

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