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This is Miranda Porche, CFer and Youtuber who has been documenting her journey taking Orkambi. Check out her first video she made and follow her Orkambi playlist here: https://bit.ly/1MMzgy6 Learn all about Orkambi (lumacaftor/ivacaftor) here: https://bit.ly/1jCoQUT Follow the latest news on Orkambi here: https://bit.ly/1RlPwnh…

In a video from the Cystic Fibrosis Foundation, watch another way to explain to your children what Cystic Fibrosis is. To see the first video, click here: https://bit.ly/1OlVSFN If you wish to learn more about Cystic Fibrosis enter here: https://bit.ly/1QltnFs Cystic Fibrosis News Today is…

Scientists at the Center for Nanomedicine at the Wilmer Eye Institute, part of Johns Hopkins University School of Medicine, may have found a new way to track the stages and the progression of cystic fibrosis (CF) by examining mucus in the lungs of CF patients. If so, mucus under a microscope…

Eva Markvoort was a young woman who blogged about her fight with cystic fibrosis.  At the age of 25, Eva passed. Despite that, Eva left behind a documentary – 65_RedRoses – where you can be inspired by her strength and get to know part of her struggle…

In this video from The Living Breath Foundation, we meet CFer Melissa. She shows us how the ocean and physical exercise has helped improve her life. Her starting lung function was 36% and it rose to 41% though exercise and surfing. Learn how she did it…

A researcher from the Faculty of Medicine, Shiraz University of Medical Sciences, in Iran, has suggested the unconventional idea that people with cystic fibrosis (CF) could be more resilient to cholera and, vice versa, that people who contract cholera could develop resistance to cystic fibrosis. The work, titled “Cystic…

In this video from the Cystic Fibrosis Foundation, learn about what motivates Jessica to participate in clinical trials. Learn more about CF Clinical Trials here: https://bit.ly/1j4TxSt…

“I couldn’t change the fact whether or not I was in pain but I could choose whether or not to suffer” says Adam Young, also known as the CF Dancer in a TEDx event. Watch the video to lean how he learned to…

Here’s a different way to explain to your children what Cystic Fibrosis is. If you wish to learn more about Cystic Fibrosis enter here: https://bit.ly/1QltnFs…

People with Cystic Fibrosis (CF) between ages 11 and 25 who think they can help inspire and engage other young people living with CF are being invited to check out a new program from the U.K.’s Cystic Fibrosis Trust. The Trust is reaching out to young people living with…