Posts by: Alice Melão, MSc

cystic fibrosis, News

A new, more efficient method for delivering gene therapies to lung tissues — based on tiny engineered proteins, called peptides —is creating therapeutic opportunities for people with diseases like ... Read more

October 25, 2019October 25, 2019

CF Mutation Carriers Have Increased Risk for Gastrointestinal Problems, Large-scale Study Finds

cystic fibrosis, News

People who carry certain genetic mutations associated with cystic fibrosis, (CF) but who do not have the disease, are at risk for some gastrointestinal problems similar to those reported ... Read more

October 15, 2019October 15, 2019

Orkambi of Definite Benefit But Risk Evident in Patients Who Can’t Tolerate It, French Study Finds

cystic fibrosis, News

Treatment with Orkambi (lumacaftor/ivacaftor) can effectively improve overall health in adolescents and adults with cystic fibrosis, but its use can be risky for those who do not tolerate the ... Read more

October 2, 2019October 2, 2019

Hexoskin Smart Shirt Can Accurately Assess Respiratory Function, May Be Tool in CF, Study Shows

cystic fibrosis, News

Using a simple shirt — a smart one — is closer to becoming a common method to measure lung function in patients with respiratory conditions, including chronic obstructive pulmonary ... Read more

August 6, 2019September 18, 2019

Eloxx Pharmaceuticals Will Launch Phase 2 ELX-02 Trial for CF Patients Carrying G542X Mutation

cystic fibrosis

Eloxx Pharmaceuticals is preparing to launch a Phase 2 clinical study in the U.S. to explore the potential of ELX-02 for treating people with cystic fibrosis (CF) who carry ... Read more

August 1, 2019September 11, 2019

Using Nebulizer While Lying on Alternating Sides Can Better Deposit Therapy Across Lungs, Trial Finds

cystic fibrosis, News

People using a nebulizer while lying on their side showed no significant loss in a treatment’s overall deposition in the lungs, a study in healthy adults and in cystic ... Read more

July 26, 2019September 4, 2019

Arts, Education, Song, and Advocacy Programs Awarded 2019 Impact Grants by CFF

cystic fibrosis, News

Five programs helping to empower the cystic fibrosis (CF) community were selected to receive up to $10,000 each under the fourth annual Impact Grants awarded by the Cystic Fibrosis ... Read more

July 15, 2019August 22, 2019

Babies Treated with Synagis Show No Lasting Benefits in Lung Health as 7-Year-Olds, Real-world Study Finds

cystic fibrosis, News

Treating infants with cystic fibrosis (CF) with the antiviral therapy Synagis (palivizumab) does not improve long-term outcomes in lung health, real-world data show. Routine use of Synagis is not recommended by ... Read more

July 8, 2019July 8, 2019

IMPACT-breath Study Explores Non-invasive Diagnosis of Pseudomonas Aeruginosa Lung Infections in CF Patients

cystic fibrosis, News

The diagnostic potential of breath analysis to detect serious lung infections in people with cystic fibrosis (CF) will be explored in a new clinical trial, which could lead to ... Read more

June 7, 2019August 7, 2019

Inaugural Clairity Ball Celebrating the Life of Claire Wineland Set for June 29

cystic fibrosis, News

Claire’s Place Foundation is throwing an inaugural fundraising ball June 29 to celebrate the life and legacy of the foundation’s late founder, Claire Wineland, who had cystic fibrosis (CF). ... Read more