Author Archives: Janeil Whitworth

Reflecting on the First Year of Parenthood

With my son’s first birthday fast approaching, I have spent a lot of time thinking about how quickly this first year of parenthood has gone. I know this is the most basic parenthood thing you can say, but here I go: It. Went. Too. Quickly. It feels like we’ve just…

9 Ways to Support Someone You Love with CF

Being in a relationship with someone who has CF can be tricky, whether as a co-worker, friend, partner, or family member. It can be hard to know exactly what to do to support them when you aren’t sure what they are going through. Following is a list of simple acts…

My CF Cough Barges into Normal Experiences

Two Christmases ago, my husband gave me a gift certificate for a massage. This week, I finally scheduled my first massage and cashed in the expiring gift. The timing felt designed, as my body is aching from inflammation and lugging around a 10-month-old baby boy one-third my size. I even…

Tidying Tips for Low-energy Days

We all have those days with CF when the coughing is nonstop and the energy has fizzled long before the clock sounds noon. Unfortunately, low-energy days don’t magically retract our responsibility to lend a hand around the house. Maybe you are a parent chasing chaotic babies and tripping over blocks…

Surviving Home IVs As a Mom

I’m no stranger to home IV antibiotics. Actually, if I am being completely honest, I think we have gotten a little too friendly over the past decade or so. I prefer to do home IVs because I am one of those patients who goes a little nuts after being trapped…

My Motherhood Journey: An Introduction to Modern CF Mama

Before the food-splattered kitchen floors, overly enthusiastic smiles, and nursery rhymes; before babbling “dadas” or “mamas” filled our living spaces; and before the arrival of my blond-haired, blue-eyed baby-treasure, there was just me. I am a college graduate sorority girl and an eternal optimist who is constantly sipping my glass-half-full…

Featured Column

How I Discovered That PTSD Was Causing My Post-transplant Struggles

PTSD, mental health, communities, stress, grateful, work, trauma, rare disease day, transplant, CF community, National Blood Donor Month, birthdays, holidays
Columnist Lara Govendo addresses an issue that several readers may relate to: post-transplant PTSD, which can wreak havoc.

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