Author Archives: Nicole Kohr

I Want to Do More Than Survive in Life After Transplant

Are you living or surviving? Most cystic fibrosis patients have dabbled with this question. To what extent does your health guide your life, rather than love or ambition? I knew the answer back in 2018, but after my bilateral lung transplant in June 2019, things grew complicated. Letting go…

‘Disappear’: On Being Absent From Your Own Life

In honor of the mixed reviews of the screen debut of the Broadway musical “Dear Evan Hansen,” I wanted to write about something every chronically ill teenager has taken part in: disappearing. High school In high school, I was voted most likely to be absent during the senior superlatives.

‘One Day More’ (Until Discharge)

Transitioning home from a lengthy hospitalization was always bittersweet. While I longed for the comforts of home, being an inpatient for weeks on end turned into a strange “Beauty and the Beast” situation. I was a volunteer hostage, and I became dependent on my host. Dependence Like a zoo animal…

Healthcare and Fashion: Send In the Gowns

If you plan on dressing like a doctor or a nurse this Halloween, you already know what to wear: a long white coat, scrubs, or an old-school nurse cap. Costuming a patient for a television show is easy, too. Simply put them in a hospital gown and have them…

Colie in the Bathroom

I assume the bathroom is a sterile, uncomfortable place for most people. It’s a room where you touch up your makeup, relieve yourself, or take a shower at the end of a long day. But for me, a chronically ill person, the bathroom is so much more than that. A…

You Learn (About Cystic Fibrosis)

“Fall Risk” is a new musical comedy about cystic fibrosis (CF) and transplant written by yours truly. CF education and awareness are very important to me. One of my favorite takeaways from the show has been how educational the rehearsals have been. Last year, during dry runs for…

‘And I Am Telling You I’m Not Going’ (to the Clinic)

Clinic anxiety is real, especially if you’re frequented by bad news. When I was little, I never wanted to go to the doctor. “Clinic” meant hearing speeches that felt disciplinary in nature, adding medications to my regimen, or being threatened with a lengthy hospital stay. Needless to say, I…

Featured Column

How to Ask for and Offer Help

A banner for Kate Delany's "Breathe and Believe" column that depicts a pair of lungs with flowers blossoming from them.
In times of need, we may not know how to ask for help or offer it to others. Columnist Kate Delany shares helpful tips on how to do it.

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