I didn’t tell my boyfriend — now husband — that I had cystic fibrosis when we started dating. We were…
Nicole Kohr
Nicole Kohr is a cystic fibrosis patient, a bilateral lung transplant recipient, and an award-winning writer. After spending her childhood split between live musical theater performances and an isolated hospital room, Nicole returned to her roots - writing. The founder of Colie Creations Inc, her mission is to advocate for patients through storytelling.
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Articles by Nicole Kohr
Have you ever heard the phrase “I can’t slow down or I’ll stop?” I’ve always operated that way. I’ve always…
In honor of the release of “Tick, Tick… Boom!” I wanted to mention one of my favorite composers,…
“Are you ready for your pulmonary function test, Nicole?” the respiratory therapist (RT) would ask. My answer was always…
In the sequel of the Harry Potter spoof musical “A Very Potter Musical,” which is appropriately titled “A Very Potter…
‘Satisfied’ (With My Care)
If you’ve ever been hospitalized, you likely received a survey upon discharge that asked, “Were you satisfied with your care?”…
I have always loved Halloween, but celebrating it with a chronic illness like cystic fibrosis has always meant having to…
This week’s thoughts are inspired by one of my childhood best friends. She lived down the street…
Are you living or surviving? Most cystic fibrosis patients have dabbled with this question. To what extent does your health…
I was evaluated for my bilateral lung transplant in March 2019. I was transplanted on June 14, 2019, and…