Patrícia Silva, PhD,  director of science content—

Hill-Rom Holdings recently announced the introduction of the VisiVest System – a connected therapeutic garment for patients requiring airway clearance therapy, including patients with cystic fibrosis (CF). The VisiVest System combines innovative high-frequency chest-wall oscillation (HFCWO) technology with wireless connectivity powered by Qualcomm Life. The HFCWO technology consists…

Cystic fibrosis (CF) patient Anne Barkley is 17-years-old and recently created a project called Cystic Fibrosis Tips N’ Tricks. The project started by the teenage activist is meant to help other people who are also dealing with the chronic and genetic disease that causes damages in the lungs and…

UPDATE 06/17/2016 One of the Our Cystic Fibrosis Journey youtubers reached out to us letting us know the following: “Sorry all, due to differences in the group the channel is no longer active. The original group creators have also decided to delete all…

UPDATE 06/17/2016 One of the Our Cystic Fibrosis Journey youtubers reached out to us letting us know the following: “Sorry all, due to differences in the group the channel is no longer active. The original group creators have also decided to delete all…

Exercise can help patients who suffer from cystic fibrosis (CF) deal with the disease and its symptoms. While CF patients should be advised by their physicians on the most appropriate exercise to do and the appropriated intensity, yoga may be a helpful option. In this video, the couple Peter and…

The professional racer Carl Edwards and the Nº 19 Stanley race team spent a Sunday racing to fundraise and help sick children, including those with cystic fibrosis (CF). The team participated on May 15, at the Dover International Speedway and if they win, the company Stanley Black & Decker said it would donate $1…

The Boomer Esiason Foundation (BEF), a partnership of medical and business leaders dedicated to increasing awareness, education, and quality of life for people living with cystic fibrosis (CF), recently announced the premiere of the documentary “Up for Air” on June 20 in a private screening in New York City. The documentary follows…

The president and CEO of the Cystic Fibrosis Foundation (CFF), Dr. Preston W. Campbell, III, MD, was recently invited to participate in a video series to talk about the work of the foundation and raise awareness for cystic fibrosis (CF). The interview is part of Better Business Bureau’s…

There are numerous organizations and foundations focused on fighting cystic fibrosis (CF), but Emily’s Entourage stands out for the rapid rise from a local group to being recognized by the White House in just a few years. The stories of the organization Emily’s Entourage and of Emily Kramer-Golinkoff go…

1. Most Female CF Patients Have No Problems Conceiving According to the Cystic Fibrosis Foundation, cystic fibrosis (CF) affects the reproductive system, but most women have no difficulties in getting pregnant. Female CF patients have a thicker cervical mucus caused by the defective functioning of the cystic fibrosis…