Luanne McKinnon, like many cystic fibrosis (CF) patients, is a determined achiever who lives life to its fullest — even earning a doctorate in art history at age 60. Her story was the subject of a recent profile in The University of Virginia’s online newspaper, UVA Today. McKinnon, who was awarded her PhD…
The Boomer Esiason Foundation (BEF) recently launched an awareness campaign for Team Boomer, its effort to encourage the cystic fibrosis (CF) community to live a healthy and active lifestyle and gets athletes to join the fight. The current initiative includes an EHE International partnership that led to a prominent BEF holiday window display at Rockefeller…
Harvard Assets, a Pennsylvania-based provider of bullion and investment-grade diamond, recently renewed its support to the Cystic Fibrosis Foundation (CFF) and its mission of supporting the development of new drugs to fight cystic fibrosis (CF), improving the quality of life for those with the disease, and ultimately finding a cure. John Tucker,…
The Cystic Fibrosis Foundation’s 2015 Ultimate Golf Experience, which ran four days beginning on Oct. 21, raised $630,000 towards continuing the organization’s mission of promoting disease research and awareness. Over 200 people attended the tournament at the Ritz-Carlton Dove Mountain resort in Tucson, Arizona. The event was hailed as a success and a source of much-needed…
The Strategies to Realize Innovation, Vision and Empowerment (STRIVE) Awards, which are granted by PTC Therapeutics, Inc., will now include a focus on cystic fibrosis (CF) advocacy as well. The company recently announced the extension of the STRIVE program and that it will begin offering funding to nonprofit organizations focused on the…
The burden of cystic fibrosis (CF) is both physical and psychological for those with the disease — a struggle that many people are unaware of. Photographer Ian Pettigrew recently published the book Salty Girls to capture CF patients’ everyday reality and to celebrate the women who suffer…
The British non-profit organization Cystic Fibrosis Trust has launched a survey entitled “Cystic Fibrosis & Treatment – What Matters to You?” for patients to share their thoughts and needs regarding treatment for cystic fibrosis (CF). With the motto “Use your voice to support access to transformational treatments,”…
Mechelen, Belgium-based biotech company Galapagos NV is presenting promising research findings at this year’s North American Cystic Fibrosis Conference (NACFC), which is currently underway in Phoenix, Arizona. The clinical-stage company, which specializes in the discovery and development of small molecule medicines with novel modes of action to treat diseases like…
Thousands of health professionals, disease experts, advocates, investors, and even patients and their families will be flocking to the Phoenix Convention Center in Arizona this coming weekend, beginning Thursday, October 8 to Saturday, October 10, 2015 for the 29th Annual North American Cystic Fibrosis Conference (NACFC). The event’s sponsor, the Cystic…
Raptor Pharmaceutical Corp., a global biopharmaceutical company focused on the development and commercialization of transformative therapeutics for rare, debilitating and often fatal diseases, recently announced it has acquired the rights to Quinsair™ (levofloxacin inhalation solution) from Tripex Pharmaceuticals. Quinsair is the first inhaled fluoroquinolone antibiotic to be approved in the European…
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