We need to come to grips with a problem deeply affecting the cystic fibrosis community. It’s an issue that we…
Tré LaRosa
Tré LaRosa is a scientific project manager, patient advocate, and writer. He has cystic fibrosis (CF) and carries two copies of the F508del mutation. He's been on Trikafta since 2019. He writes about science, living with CF, grief, family, and everything in between in an effort to get you thinking about what it means to be human. He lives in Arlington, Virginia with his fiancée Jessica and their two wonderful, lazy dogs, Duncan and Leo. He enjoys playing sports, being outdoors, and reading — and especially buying more books.
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Articles by Tré LaRosa
So This Is How My Life Is Now
Humans are creatures of habit. We become accustomed to our circumstances. Most of us complain about our boring routines, but…
2019 has given me much to reflect upon, including which of my columns are my favorites from the year. My…
I’ve found that one of the most fulfilling things I can do in this life is to work toward a…
My CF Is My Burden Alone
It is natural that we grow attached to the people with whom we develop relationships. That’s just how it is.
I learned long ago not to expect everyone to agree with me. I also realized that disagreement isn’t inherently wrong.
I’m writing this column on the day I start treatment with Trikafta (elexacaftor/tezacaftor/ivacaftor), a new cystic fibrosis (CF) medication…
Last week, the Cystic Fibrosis Foundation launched a new initiative called “Path to a Cure.” A press release called…
Giving My Anxiety a Name
Lung function — typically measured by forced expiratory volume in the first second (FEV1) — is the boogeyman for…
A few weeks ago, an article with the headline, “Vertex sinks on reports of deaths of patients taking cystic…