Columns

All I Want for Christmas Is to Feel Normal

In elementary school, the holiday season was always a time of illness. With cold and flu season being driven, in large part, by Thanksgiving travels and family gatherings, it was inevitable that kids would return to school with whatever respiratory bug some uncle flew into Alabama from North Carolina,…

The Many Reasons Why I Love Reading Books

I’m a bit of a nerd when it comes to books. I get so excited when new books are delivered to my home. Yes, I still read physical books. Am I alone in that? I’m not afraid to admit I’m old-fashioned about the healing power of physical books. They’ve changed…

When the Holidays Aren’t Merry and Bright

Every night when I came home from caring for our daughter in the neonatal intensive care unit (NICU), I would gather our mail to sort through it. It was a task I used to distract myself and make life seem a little more normal. As the holiday season approached, I…

As a CFer, I Found Community in Punk Rock Music

There is power in finding a community where you belong. For example, many people love Marvel and bond with one another over their shared love of the iconic movies and comic books. I’ve always loved Batman because he’s an outsider who’s spent his life trying to fight corruption. He just…

The Unpredictability of CF Taught Me How to Let Go

“How is this possible? We did everything right!” I couldn’t comprehend what my daughter Claire’s pulmonologist was telling me at her quarterly cystic fibrosis (CF) clinic visit. He explained that her most recent chest X-rays showed signs of disease progression. She was only 2 years old. Up until that…

Disabled Politicians Can Lead the Way

When I did standup comedy back in the day, I had a bit I worked on for a while, but could never quite get right. The routine assumed that if I, a person with cystic fibrosis, ever decided to run for political office, I’d be forced to make myself…