Columns

If I had a dollar for every time I’ve heard, “But you don’t look sick,” or “But at least you look good,” I’d be a millionaire by now. Can you relate? Living with a chronic, invisible illness that ravaged my lungs for 30 years tells me otherwise. I heard…

In honor of the release of “Tick, Tick… Boom!” I wanted to mention one of my favorite composers, Jonathan Larson, and one of my favorite Broadway shows, “Rent,” which he wrote when he was a young, struggling artist and chronic illness patient. The story, which follows a…

When I was a kid, at the start of every school year my mother would pay a visit to my younger sister Mary’s new teacher to share information about Mary’s cystic fibrosis. One of the items she would share was a “Super Cystic and Fabulous Fran Fibrosis” book. These…

I don’t remember why I said what I said to the little girl I had just met on the playground. “I have something called cystic fibrosis.” Maybe I was coughing or short of breath. Or maybe we were exchanging secrets in the tunnel bridge. I don’t remember what game we…

Lung transplant is a major topic for families of people with cystic fibrosis. In a recent column, I talked about what it was like when my brother, Bradley, spent several weeks in the ICU. The result of that stay turned out to be that he needed a…

Herbs have been an important part of my life for more than a decade. Herbal remedies play an essential role in maintaining my health. I also believe in science and support modern medicine. As cold and flu season rolls around, it might be a good…

Hiking has become one of my favorite activities since my double-lung transplant four years ago. Before the transplant, hiking would have never been in my vocabulary. Having cystic fibrosis meant breathing was a struggle, and I would get a bellyache of anxiety when people would ask me to go hiking…

“Are you ready for your pulmonary function test, Nicole?” the respiratory therapist (RT) would ask. My answer was always no, I was never ready for the test. In fact, I’d panic over it for at least a week, clinging to the possibility that my lung function somehow had…

While the world could be more accommodating to people with disabilities, I’ll admit I feel guilty that I’m allowed to register for my college classes 48 hours before my nondisabled peers. This priority access is available to any disabled student, thanks to the Americans with Disabilities Act (ADA),…

In the sequel of the Harry Potter spoof musical “A Very Potter Musical,” which is appropriately titled “A Very Potter Sequel,” we follow characters we’ve come to know and love as they go back in time. I was always attracted to the opening number, “It’s Not Over Yet,” because…