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Being in a relationship with someone who has CF can be tricky, whether as a co-worker, friend, partner, or family member. It can be hard to know exactly what to do to support them when you aren’t sure what they are going through. Following is a list of simple acts…

“It’s all come full circle,” I repeated, rather exhaustingly, about two dozen times over the past two weeks when visiting family in Florida. Exactly two years ago, my family learned we’d have to leave Hawaii, my home for 12 years, to get my lung transplant at the University…

Guilt. It’s a feeling I’ve had to process a lot lately. It’s something we all deal with from time to time. Maybe it’s due to a forgotten meeting, the dirty dishes piled up in the sink, or stumbling to bed without a kiss goodnight. Things happen, we are…

Two Christmases ago, my husband gave me a gift certificate for a massage. This week, I finally scheduled my first massage and cashed in the expiring gift. The timing felt designed, as my body is aching from inflammation and lugging around a 10-month-old baby boy one-third my size. I even…

On July 2, 2016, I awoke from a nightmare with a wheeze. In the movies, people awaken from nightmares with a gasp. But gasping takes air. I’d been suffocating for days. Days of tripping through a horrific hallucination that may sound funny, but only if you didn’t live…

Part two of a series. Read part one. Last week, I wrote about how disheartened I felt that many lung transplant centers refuse to help cystic fibrosis patients with Mycobacterium abscessus complex (Myco Ab), which is a species of nontuberculous mycobacteria (NTM). Myco Ab makes transplant…

Being in a committed, loving, long-term relationship is a distinctly intimate experience. It is the most intimate experience of humanhood many would argue. To see a person walking by and say to them, “Hey, you’re fairly OK-looking. Would you like to hold hands for forever and accrue…

At some point in the eighth grade in 2008, I drank some bad water. Later, I vomited and some of that yuck liquid aspirated into my lungs. That invasion carried with it a battalion of crack marines, nontuberculous mycobacteria (NTM), to join the well-weathered forces…

I’ve had headaches since I was 10. Debilitating, eye-crushing, every-bone-in-my-face-feels-like-it’s-been-smashed-with-a-baseball-bat headaches. Depending on what doctor you ask, they either can or cannot be classified as migraines. (Well, depending on what doctor you ask, there’s really no difference between headaches and migraines in the first…

We all have those days with CF when the coughing is nonstop and the energy has fizzled long before the clock sounds noon. Unfortunately, low-energy days don’t magically retract our responsibility to lend a hand around the house. Maybe you are a parent chasing chaotic babies and tripping over blocks…